Applying the principles of adaptive leadership to person‐centred care for people with complex care needs: Considerations for care providers, patients, caregivers and …
K Kuluski, RJ Reid, GR Baker - Health Expectations, 2021 - Wiley Online Library
Background Health systems in many countries see person‐centred care as a critical
component of high‐quality care but many struggle to operationalize it in practice. We argue …
component of high‐quality care but many struggle to operationalize it in practice. We argue …
Bridging the healthcare gap: building the case for epilepsy virtual clinics in the current healthcare environment
B Lavin, C Dormond, MH Scantlebury, PY Frouin… - Epilepsy & Behavior, 2020 - Elsevier
Access to quality healthcare remains a challenge that is complicated by mounting pressures
to control costs, and now, as we witness, the unprecedented strain placed on our healthcare …
to control costs, and now, as we witness, the unprecedented strain placed on our healthcare …
[HTML][HTML] LoVE in a time of CoVID: Clinician and patient experience using telemedicine for chronic epilepsy management
J Banks, D Corrigan, R Grogan, H El-Naggar… - Epilepsy & Behavior, 2021 - Elsevier
As part of our ongoing interest in patient-and family-centered care in epilepsy, we began,
before the onset of the CoVID-19 pandemic, to evaluate the concerns and preferences of …
before the onset of the CoVID-19 pandemic, to evaluate the concerns and preferences of …
The development of an epilepsy electronic patient portal: Facilitating both patient empowerment and remote clinician‐patient interaction in a post‐COVID‐19 world
K Power, Z McCrea, M White, A Breen, B Dunleavy… - …, 2020 - Wiley Online Library
Objectives The current coronavirus disease 2019 (COVID‐19) pandemic stresses an
urgency to accelerate much‐needed health service reform. Rapid and courageous changes …
urgency to accelerate much‐needed health service reform. Rapid and courageous changes …
[HTML][HTML] Identification and referral of patients with refractory epilepsy from the primary to the tertiary care interface in New South Wales, Australia
Objectives This mixed-method feasibility study conducted in New South Wales (NSW),
Australia, aimed to explore clinical practices around the identification of patients with …
Australia, aimed to explore clinical practices around the identification of patients with …
Would people living with epilepsy benefit from palliative care?
BM Kluger, C Drees, TR Wodushek, L Frey, L Strom… - Epilepsy & Behavior, 2021 - Elsevier
Palliative care (PC) is an approach to the care of persons living with serious illness and their
families that focuses on improving quality of life and reducing suffering by addressing …
families that focuses on improving quality of life and reducing suffering by addressing …
Coproducing health and well-being in partnership with patients, families, and healthcare providers: A qualitative study exploring the role of an epilepsy patient portal
Z McCrea, K Power, R Kiersey, M White, A Breen… - Epilepsy & Behavior, 2021 - Elsevier
Background Coproduced epilepsy care sees people with epilepsy (PwE), their care-proxies,
and healthcare providers (HCPs), working together as partners to build strong relationships …
and healthcare providers (HCPs), working together as partners to build strong relationships …
Are patients ready for integrated person-centered care? A qualitative study of people with epilepsy in Ireland
R Power, JP Byrne, R Kiersey, J Varley, CP Doherty… - Epilepsy & Behavior, 2020 - Elsevier
Abstract The National Clinical Programme for Epilepsy (NCPE) in Ireland aims to deliver a
holistic model of integrated person-centered care (PCC) that addresses the full spectrum of …
holistic model of integrated person-centered care (PCC) that addresses the full spectrum of …
Igniting intersectoral collaboration in chronic disease management: a participatory action research study on epilepsy care in Ireland
J Varley, R Kiersey, R Power, JP Byrne… - Journal of …, 2020 - Taylor & Francis
Models of care developed to improve the lives of people with chronic diseases highlight
integrated care as essential to meeting their needs and achieving person (patient)-centered …
integrated care as essential to meeting their needs and achieving person (patient)-centered …
[HTML][HTML] Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery
Methods: Four databases were searched for articles published since 2010 that reported on
integrated care in epilepsy. Data were extracted and synthesised into components of …
integrated care in epilepsy. Data were extracted and synthesised into components of …