Estimating life expectancy and years of life lost for autistic people in the UK: a matched cohort study

E O'Nions, D Lewer, I Petersen, J Brown… - The Lancet Regional …, 2024 - thelancet.com
Background Previous research has shown that people who have been diagnosed autistic
are more likely to die prematurely than the general population. However, statistics on …

Mortality risk in adults with intellectual disabilities and epilepsy: an England and Wales case–control study

JJ Sun, L Watkins, W Henley, R Laugharne… - Journal of …, 2023 - Springer
Background People with epilepsy (PWE) and people with intellectual disabilities (ID) both
live shorter lives than the general population and both conditions increase the risk of death …

The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review

M Hughes, K Hanna, A Wiles, E Taylor, C Giebel - Dementia, 2024 - journals.sagepub.com
Background The life expectancy of people with a learning disability is increasing and with
this comes a greater risk of developing dementia. Dementia poses new challenges for both …

[HTML][HTML] Managing patients with intellectual disability and epilepsy in the acute medical setting

S Samarasekera - Clinical Medicine, 2024 - ncbi.nlm.nih.gov
1. Background Intellectual disability (ID) is defined by an intelligence quotient (IQ)< 70
associated with reduced adaptive skills arising in childhood (before the age of 18yrs), which …

Being human as praxis: for people with learning disabilities

D Goodley - Subjectivity, 2023 - Springer
The paper posits that being human as praxis—in relation to the lives of People with Learning
Disabilities—offers a significant and original insight into critical and social theory across the …

Evidencing the challenges of care delivery for people with intellectual disability and epilepsy in England by using the Step Together toolkit

T Shillito, L Watkins, H Ali, G Page, A Pullen… - BJPsych …, 2024 - cambridge.org
BackgroundPeople with intellectual disability (PwID) and epilepsy have increased
premature and potentially preventable mortality. This is related to a lack of equitable access …

“She just makes it easier…” The impact of having a dedicated nursing role in supporting people with intellectual disability when accessing acute hospitals, from the …

M Ní Riain, S Wickham - Journal of Intellectual Disabilities, 2024 - journals.sagepub.com
Learning Disability Liaison Nurses have been shown to improve hospital experiences and
this is an emerging role in Ireland. This research qualitatively explored the impact of a …

Constipation prevalence and risk from prescribed medications in people with intellectual disability: Findings from an English mortality programme

C Roberts, J Ding, D Bishara, S Riaz… - Journal of …, 2024 - journals.sagepub.com
Constipation is common in people with intellectual disability, with case reports of associated
deaths. Risk factors include lifestyle factors, health conditions, and certain medications. We …

'It's designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over

H Mansour, A Gillions, J Brown, A Pattenden… - …, 2024 - journals.sagepub.com
Autistic people are more likely to experience physical and mental health difficulties across
the lifespan, leading to an increased risk of premature mortality likely due to health …

Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill …

S Ryan, F Ribenfors, M Mikulak… - Sociology of Health & …, 2024 - Wiley Online Library
Understanding how and why someone dies unexpectedly is key to bereaved family
members. The coronial process in England investigates instances where the cause of death …