The reported impact of public involvement in biobanks: a scoping review
L Luna Puerta, W Kendall, B Davies, S Day… - Health …, 2020 - Wiley Online Library
Background Biobanks increasingly employ public involvement and engagement strategies,
though few studies have explored their impact. This review aims to (a) investigate how the …
though few studies have explored their impact. This review aims to (a) investigate how the …
Representing COVID-19 information in collaborative knowledge graphs: the case of Wikidata
Information related to the COVID-19 pandemic ranges from biological to bibliographic, from
geographical to genetic and beyond. The structure of the raw data is highly complex, so …
geographical to genetic and beyond. The structure of the raw data is highly complex, so …
Citizen scientists track a charismatic carnivore
MG Connors, H Chen, H Li, A Edmonds… - Journal of Orthoptera …, 2022 - JSTOR
The recent integration of citizen science with modern technology has greatly increased its
applications and has allowed more people than ever to contribute to research across all …
applications and has allowed more people than ever to contribute to research across all …
Gender diverse people's psychological wellbeing and identity in the context of gender affirming speech pathology practice: A qualitative study protocol
Background Gender diverse people may experience discomfort with the sound of their voice.
Additionally, their psychological wellbeing, closely connected to a person's identity, or …
Additionally, their psychological wellbeing, closely connected to a person's identity, or …
“I just don't know enough”: Australian perspectives on community involvement in health and medical research
Background There is increasing global support from governments and other funding bodies
for community involvement in research, alongside a scientific and moral imperative for …
for community involvement in research, alongside a scientific and moral imperative for …
Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome …
Introduction The Core Outcome Measures for Improving Care (COM-IC) project aims to
deliver practical recommendations on the selection and implementation of a suite of core …
deliver practical recommendations on the selection and implementation of a suite of core …
A pathway to precision medicine for Aboriginal Australians: a study protocol
(1) Background: Genomic precision medicine (PM) utilises people's genomic data to inform
the delivery of preventive and therapeutic health care. PM has not been well-established for …
the delivery of preventive and therapeutic health care. PM has not been well-established for …
[HTML][HTML] Citizen Science for One Digital Health: A Rapid Qualitative Review of Studies in Air Quality with Reflections on a Conceptual Model
Abstract The concept of One Health, a system-based approach that acknowledges the
interdependence of human, animal, and ecosystem health, has grown in prominence over …
interdependence of human, animal, and ecosystem health, has grown in prominence over …
Involving people affected by a rare condition in shaping future genomic research
Background There is evidence that involving potential participants and the public in co-
designing research can improve the quality of the study design, recruitment and …
designing research can improve the quality of the study design, recruitment and …
Co-designing genomics research with a large group of donor-conceived siblings
Background Human genomics research is growing rapidly. More effective methods are
required for co-design and involving people, especially those sub-populations which are …
required for co-design and involving people, especially those sub-populations which are …