Pediatric palliative care is recommended by many organizations. Yet, there is no information
available on the progress that has been made in providing this care or the gaps that still …

Aim Patient engagement (PE) in pediatric health services research is challenging due to
contextual factors such as busyness of parenting, work schedules, and diverse family …

Aim: The aim was to describe the nature, frequency, severity and management challenges of
symptoms in children with two rare life‐limiting conditions [Mucopolysaccharide (MPS) and …

Increased patient advocacy has resulted in a shift toward more active patient engagement in
the research. A scoping review was conducted to explore the literature on healthcare …

The diagnosis of a child's life-shortening disease leads many American parents to utilize
religious beliefs. Models relating religious constructs to health have been proposed. Still …

Aim To increase understanding of grandparental grief following the death of a grandchild
from a life‐limiting condition. Design Meta‐ethnography. Data sources Academic Search …

The Delphi process, widely used in health research to seek consensus on key issues
amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers …

Aims: To explore the lived experience of caring and care planning for a child with a life-
limiting condition (LLC). Method: Using van Manen's conceptualisation of hermeneutic …

Children's palliative care has evolved in recent years and is now recognised as a distinct
area of health and social care practice. Whilst children's hospices are viewed as central to …

Currently, there are many changes taking place in the area of paediatric palliative care.
These include the role of the nurse, development of national policies, and recommendations …