Where do neurodevelopmental disorders go? Casting the eye away from childhood towards adulthood

G Antolini, M Colizzi - Healthcare, 2023 - mdpi.com
Neurodevelopmental disorders (NDDs) encompass a group of complex conditions with
onset during the early developmental period. Such disorders are frequently associated with …

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach …

L Nguyen, C Dawe-McCord, M Frost… - Frontiers in …, 2023 - frontiersin.org
There is a growing number of youth with healthcare needs such as disabilities or chronic
health conditions who require lifelong care. In Canada, transfer to the adult healthcare …

The lived experience of adults and parents: Transitioning from paediatric to adult health care with oesophageal atresia and tracheooesophageal fistula

A HaigFerguson, V Wallace… - Journal of Clinical …, 2023 - Wiley Online Library
Abstract Aim and Objective To explore the experience of healthcare transition from
paediatric to adult health care for adults born with oesophageal atresia and tracheo …

Advances and gaps in policy, practice, and research in transition for students with intellectual and developmental disabilities across four countries

J Šiška, J BeadleBrown, R Tichá… - Journal of Policy and …, 2024 - Wiley Online Library
The difficulties faced by youth with intellectual and developmental disabilities (IDDs) and
their families as they move into adulthood are widely documented. The aim of the paper is to …

Young adults with kidney failure lived experiences of kidney replacement therapy decisionmaking

S OforiAnsah, M Evans, L Baillie… - Journal of Renal …, 2024 - Wiley Online Library
Background Young adults living with kidney failure make decisions to select a kidney
replacement therapy choice in partnership with healthcare professionals. However, little is …

Action priorities to facilitate planning of the transition to adulthood of young people with profound intellectual disability

C Gauthier-Boudreault, F Gallagher… - International Journal of …, 2024 - Taylor & Francis
Objectives It is essential for parents and professionals to be engaged in identifying and
developing solutions that facilitate the transition to adulthood of young people with profound …

Transition of young people from children's into adults' services: what works for whom and in what circumstances–protocol for a realist synthesis

P Sipanoun, S Aldiss, L Porter, S Morgan, E Powell… - BMJ open, 2024 - bmjopen.bmj.com
Introduction The process of transitioning young people from children's or adolescents' health
services into adults' services is a crucial time in the lives and health of young people and …

Kawasaki disease: patients' transition journey and recommendations for adult care

N Chahal, J Rush, A Lardizabal, R Nobile… - Cardiology in the …, 2024 - cambridge.org
Background: Children who develop coronary artery aneurysms after Kawasaki disease are
at risk for cardiovascular morbidity, requiring health care transition and lifelong follow-up …

Management of childhood-onset growth hormone deficiency in patients transitioning from pediatric to adult care: A review of the literature and consensus report from a …

A AlMutair, A Alsagheir, A AlShammary… - … Journal of Pediatrics …, 2023 - journals.lww.com
Despite increased recognition of the importance of optimizing care for patients with
childhood-onset growth hormone deficiency (CO-GHD) during the transition period from …

A comparison of young adults with and without cancer in concurrent hospice care: implications for transitioning to adult health care

K Mooney-Doyle, J Keim-Malpass… - Journal of Adolescent …, 2022 - liebertpub.com
Purpose: Concurrent hospice care provides important end-of-life care for youth under 21
years. Those nearing 21 years must decide whether to shift to adult hospice or leave …