Background: Many patients awaiting lung transplantation die before a donor organ becomes
available. Ex vivo lung perfusion (EVLP) allows initially unusable donor lungs to be …

BACKGROUND: Cystic fibrosis (CF) specific patient-derived and reported symptom tools are
critical steps toward evaluating the outcomes of new therapies for CF. METHODS: We …

Lung transplantation is a complex, high-risk, potentially life-saving therapy for the end-stage
lung disease of cystic fibrosis (CF). The decision to pursue transplantation involves …

Chest physiotherapy (CP) is seen as a cornerstone of Cystic Fibrosis (CF) treatment.
However, previous studies have suggested that adherence to CP is low. This study of adults …

This paper focuses on how adults with cystic fibrosis (CF) attending a specialist CF centre in
the UK perceive their health. In common with many other genetic diseases, CF is …

Introduction Transplantation is a life-saving option for patients with liver disease. However,
recovery is variable. Impairments in physical health, emotional wellbeing and quality of life …

Cystic fibrosis has traditionally been conceptualized as a fatal childhood disease. In
contrast, survival age has been increasing steadily such that adults now routinely seek to …

In the context of understanding motivations for clinical research participation, many authors
consider issues such as informed consent and how patients perceive the research method …

Lung transplant for patients with end-stage cystic fibrosis (CF) in the UK is recognized as the
only successful treatment for CF patients with advanced lung disease. This study uses an …

Background Primary ciliary dyskinesia (PCD) is a chronic respiratory disease for which there
is little psycho-social research and no qualitative studies of individuals living with the …