Roles of pediatric surgeons in palliative pediatric oncology

HD Le, S Braungart… - Pediatric Blood & …, 2024 - Wiley Online Library
Pediatric surgeons engaged in oncology will inevitably treat patients receiving palliative
care, but their role in this context is poorly described. This article identifies some of the …

Moral Distress and Pediatric Palliative Care

S Jeong, A Knackstedt, JS Linebarger, BS Carter - Children, 2024 - mdpi.com
Moral distress is a complex phenomenon whereby a person feels tension, constraint, or
conflict with an action or circumstance because it goes against their individual or the …

Chinese and Belgian pediatricians' perspectives toward pediatric palliative care: an online survey

Y Zhong, A Cavolo, V Labarque, BD de Casterlé… - BMC Palliative Care, 2024 - Springer
Background As pediatricians play a vital role in pediatric palliative care (PPC),
understanding their perspectives toward PPC is important. PPC is established for a long …

Goals of Surgical Interventions in Youths Receiving Palliative Care

DI Ellis, L Chen, SG Wexler, M Avery, TD Kim… - JAMA Network …, 2024 - jamanetwork.com
Importance Most youths receiving palliative care undergo many surgical interventions over
their lifetimes. The intended purposes of interventions in the context of goals of care are not …

A tool for guiding goal-concordant medical recommendations in paediatric serious illness

AS Porter, JE Freitas, EM Frechette… - BMJ Supportive & …, 2023 - spcare.bmj.com
For paediatric patients with serious illness and their families, medical decision making is
complex. 1 Shared decision making requires the clinical team to clearly communicate …

“At Least I Can Push this Morphine”: PICU Nurses' Approaches to Suffering Among Dying Children

EG Broden, IJ Eche-Ugwu, DD DeCourcey… - Journal of pain and …, 2024 - Elsevier
Context Parents of children who die in the pediatric intensive care unit (PICU) carry
memories of their child's suffering throughout a lifelong grieving experience. Given their …

Benchmarking Pediatric Palliative Care Delivery

SK Luthy, L Humphrey, P Keefer - Hospital pediatrics, 2024 - publications.aap.org
Among the most common phrases in this report are “research is limited” and “systematic
data are not available”….[there is] little research on which to base decisions about services …

“Palliative Intensive Care” at the End of a Child's Life

AS Porter, SR Gouda, EG Broden… - Hospital …, 2023 - publications.aap.org
Robbie is a 9-year-old boy with metastatic osteosarcoma, recently found to have significant
disease progression with bilateral pulmonary involvement and diffuse bony pain. When his …

Including Goals of Care in Treatment Decisions—Meeting Them Where They Are Involves Moving

JS Linebarger - JAMA pediatrics, 2023 - jamanetwork.com
Asking about the guiding goal of care (GOC) offers health care professionals a perspective
on how an individual patient or a family prioritizes health care decisions and is an essential …

Bereaved parent preferences on quality end‐of‐life care for children with cancer in the South

I Martinez, E Currie, ES Davis, R Kumar, V Lawhon… - Cancer - Wiley Online Library
Purpose The authors sought to understand bereaved family preferences for end‐of‐life
(EOL) care, particularly among Black families and those in the South. Methods Semi …