Caregiver burden in pediatric dialysis

A Wightman - Pediatric Nephrology, 2020 - Springer
In spite of improvements in expected survival, neurodevelopmental outcome, and quality of
life, decision-making in neonatal dialysis remains controversial in high-resource countries …

Sources of distress experienced by parents of children with chronic kidney disease on dialysis: a qualitative systematic review

ZH Ong, CH Ng, PL Tok, MJX Kiew, Y Huso… - Journal of Pediatric …, 2021 - Elsevier
Problem Parents of children with chronic kidney disease face tremendous burdens of care,
having to adopt dual roles as parents and informal healthcare providers, delivering home …

[HTML][HTML] Addressing the ethical challenges of providing kidney failure care for children: a global stance

P Pais, A Wightman - Frontiers in Pediatrics, 2022 - frontiersin.org
Children with kidney failure require kidney replacement therapy (KRT), namely maintenance
dialysis and kidney transplant. Adequate kidney failure care consists of KRT or conservative …

Experiences and needs of families caring for children and adolescents with chronic kidney disease: A meta-synthesis

LX Wee, PST Tan, HC Chen - Journal of Pediatric Nursing, 2022 - Elsevier
Problem Families struggle to care for children and adolescents with chronic kidney disease
(CKD). They face extensive burden of care and altered family dynamics. Eligibility criteria A …

[HTML][HTML] When dialysis “Becomes life”: pediatric caregivers' lived experiences obtained from patient-reported outcomes measures

D Levy Erez, MR Meyers, S Raman, M Thomas… - Frontiers in …, 2022 - frontiersin.org
Introduction Qualitative research reveals significant caregiver impact resulting from
managing children requiring chronic dialysis but offers few quantitative measures of their …

Catastrophic healthcare expenditure and caregiver burden in pediatric chronic kidney disease—a mixed methods study from a low resource setting

S Reddy, N Scholes-Robertson, JM Raj, P Pais - Pediatric Nephrology, 2024 - Springer
Background Caregivers of children with chronic kidney disease (CKD) in low resource
settings must provide complex medical care at home while being burdened by treatment …

Моральный дистресс в паллиативной помощи детям: классические проблемы и вызовы пандемии COVID-19

ДИ Ноздрачев, КА Замятин, МД Мирошниченко - Человек, 2022 - elibrary.ru
Моральный дистресс-актуальная проблема медицинской этики, психологии и
здравоохранения. В числе его прямых эффектов-персистирование негативных …

Muslim caregivers' experiences in caring for patients receiving peritoneal dialysis

S Seephom, P Jittanoon, K Balthip - Journal of Renal Care, 2023 - Wiley Online Library
Background Fulfilling the role of a family caregiver has a substantial effect on the lives of
those involved. However, existing information on family caregivers of patients receiving …

[HTML][HTML] Coexisting with the life of patients with hemodialysis: qualitative meta-synthesis study of life of caregivers of patients with hemodialysis

EY Kim, YN Lee - International Journal of Environmental Research and …, 2022 - mdpi.com
As the number of patients with hemodialysis (HD) continues to increase, so too does the
number of people depending on caregivers. There is need to pay attention to the lives of …

Life outcomes after paediatric kidney transplantation: a qualitative, biographical study in long-term survivors

V Ritschl, T Stamm, A Selzer, A Boesendorfer… - Archives of Disease in …, 2024 - adc.bmj.com
Objective The objective of this study was to analyse the narrative life stories of children with
end-stage kidney disease (ESKD) and their families to determine how health professionals …