Background With increasing survival rates in pediatric oncology, the need to monitor health-
related quality of life (HRQOL) is becoming even more important. However, available patient …

Aim To identify and evaluate psychometric properties of assessment tools for assessing pain
interference in children, adolescents, and adults with chronic pain and the inability to self …

Importance Adult patients are considered the best reporters of their own health-related
quality of life (HRQOL). Self-report in pediatrics has been challenged by a limited array of …

Context Modifiable factors of health-related quality of life (HRQOL) are poorly described
among children with advanced cancer. Symptom distress may be an important factor for …

Little is known about the impact of cancer on family relationships from the perspective of the
pediatric cancer patient and their sibling (s). This study assessed and compared children's …

Purpose This report represents a subanalysis of data from a primary study and addresses a
gap in understanding the similarities and differences of symptom reporting between children …

Abstract Background Patient-Reported Outcomes Measurement Information System
(PROMIS) measures are used increasingly in clinical care. However, for juvenile idiopathic …

Objective Youth with chronic illness are at higher risk for psychosocial difficulties, leading to
a call for screening via patient-reported outcomes (PROs). The purpose of the current review …

Neuropathic pain (NeuP) can be difficult to diagnose and manage in children. Data
regarding prevalence and sex-dependent differences are limited, and more detailed …

Background Adverse event (AE) reporting in oncology trials is required, but current practice
does not directly integrate the child's voice. The Pediatric Patient‐Reported Outcomes …