Neonates and families face challenges in hypothermic therapy, including trauma to parents,
extreme emotions, and unfamiliarity with the medical system. Communication is an essential …

Background: Children with severe neurological impairment (SNI) commonly receive care in
the hospital setting necessitating frequent interactions with clinicians. Yet, parents report that …

Background and Objectives Clinicians often communicate complex, uncertain, and
distressing information about neurologic prognosis to parents of critically ill infants. Although …

Importance In the neonatal intensive care unit, there is a lack of understanding about how
best to communicate the prognosis of a serious complication to parents. Objective To …

Objective We characterize the content and role of prognostic discussion for infants with
neurologic conditions. Methods In this descriptive qualitative study, we prospectively …

Abstract Purpose Children born with Complex Life-Threatening Conditions (CLTCs) often
require complex and specialized services. Parents of children with CLTCs balance the role …

Background Parents of neonates with seizures are at risk of mental health symptoms due to
the impact of illness on family life, prognostic uncertainty, and the emotional toll of …

Context Increasingly, chronically critically ill (CCI) infants survive to discharge from Neonatal
Intensive Care Units (NICUs). Little is known about their care intensity and the primary and …

Aim To investigate parents' preferences and motivations for receiving and discussing
prognostic genetic test results. Method We used a cross‐sectional, interpretive description …

Objective Discrepancies between physician and parent neonatal prognostic expectations
are common. Optimism bias is a possible explanation. Study design Parents interpreted …