Surgical reconstruction of craniofacial malformations

MA Carro, G Donofrio, E Tokgöz - … facial plastic surgery: A review of …, 2023 - Springer
Craniofacial anomalies contribute to one third of all congenital deformities, and are often
observed with syndromic genetic conditions such as Crouzon or Treacher-Collins syndrome …

Social media and website use: the experiences of parents and carers accessing care at the Oxford craniofacial unit

S Kilcoyne, S Overton, S Brockbank… - Journal of …, 2024 - journals.lww.com
Methods: A cross-sectional survey-based design was employed. Participants were parents
of children with craniosynostosis attending multidisciplinary craniofacial clinics within the …

Raising a child with craniosynostosis: Psychosocial adjustment in caregivers

B Costa, W Edwards… - The Cleft Palate …, 2023 - journals.sagepub.com
Objective While knowledge of the psychosocial impact of craniofacial conditions is growing,
literature regarding the impact on parents remains limited. Parents of children born with a …

[HTML][HTML] Appearance or attitude: what matters to craniosynostosis patients? Association of self-esteem, depressive symptoms, and facial aesthetics in patients with …

A Svalina, E Heikura, T Savolainen, W Serlo… - Child's Nervous …, 2022 - Springer
Purpose The aim of this study was to investigate the presence of depressive symptoms and
self-esteem, and their association with facial asymmetry in adults who were operated on in …

Long-term treatment results of craniosynostosis

A Svalina - 2024 - oulurepo.oulu.fi
Original papers Svalina, A., Vuollo, V., Serlo, W., Sinikumpu, J.-J., Silvola, A.-S., & Salokorpi,
N.(2022). Craniofacial characteristics and cosmetic satisfaction of patients with sagittal and …

“When I was Younger, My Story Belonged to Everyone Else”: Co-production of Resources for Adults Living with Craniosynostosis

NM Stock, B Costa, W Bannister… - The Cleft Palate …, 2024 - journals.sagepub.com
Objective Despite growing recognition that congenital craniofacial conditions have lifelong
implications, psychological support for adults is currently lacking. The aim of this project was …

Surgery for craniosynostosis: Developing a psychosocial booklet for families

NM Stock, L Pearse, L Murfett, K Pearse… - Journal of …, 2024 - journals.lww.com
Parents of children with craniosynostosis may experience psychological distress, particularly
during intensive periods of treatment. Yet, recent research indicates parents may not be …

Health-Related Quality of Life in Mexican Children and Adolescents with Non-Syndromic Craniosynostosis

J Moreno-Villagómez… - The Cleft Palate …, 2024 - journals.sagepub.com
Objective Assess the Health-Related Quality of Life in children and adolescents with non-
syndromic craniosynostosis and compare it with participants without craniosynostosis …

[HTML][HTML] The awareness of treatment plans of craniosynostosis: guideline for patient and family version

B Aminmansour, S Fatehi, A Mokhtari, A Riazi… - Egyptian Pediatric …, 2024 - Springer
Background Functional and structural complexities associated with craniosynostosis present
challenges for families of affected individuals. Additionally, these patients undergo …

The experience of families receiving a diagnosis of craniosynostosis for their child

G Hall - 2024 - search.proquest.com
Objective: Receiving a diagnosis of a congenital craniofacial anomaly (CFA) not onlyaffects
the psychological health of the individual themselves, but also the wider familyunit. Previous …