Hereditary cancer syndromes result from germline genetic alterations predisposing
individuals to higher lifetime cancer risk than the general population. Hereditary cancer …

Objectives The aim of this scoping review is to provide an overview of the existing research
that investigates the lived experience during the peri-diagnostic period of breast cancer …

Young adults at risk of a hereditary condition require the provision of accurate information to
make an informed decision about genetic testing and risk management options. At‐risk …

Li-Fraumeni syndrome (LFS) is a rare hereditary cancer syndrome in which individuals have
a significantly increased risk of developing multiple cancers throughout the life span. An LFS …

In families with hereditary breast/ovarian cancer, complex disease histories challenge
established patterns of family communication and influence decision-making for clinical …

Background and objective: Discussing population-based cancer risk and screening is
common in general practice. Patients with an inherited cancer syndrome, however, may …

Children's literacy about the genetics of late-onset hereditary breast/ovarian cancer (HBOC)
often develops through conversations with parents about BRCA gene testing and adults' …

Abstract Aims and Objectives To systematically identify and synthesise the experiences
reported by women with a breast cancer mutation who do not have cancer as reported in …

Abstract Problem Identification Many BRCA1/2 carriers experience an increase in distress
after diagnosis; however, there is a need to review the longer term psychological …

Implications Practice: Parents and providers can support children's genetic health literacy
and psychosocial adjustment to hereditary breast/ovarian cancer (HBOC) risk information …