In patients suffering from moderate-to-severe chronic kidney disease (CKD) or end-stage
renal disease (ESRD), subjected to hemodialysis (HD), pain is very common, but often …

This article is published as part of a supplement sponsored by Kidney Disease: Improving
Global Outcomes (KDIGO). The opinions or views expressed in this supplement are those of …

Despite continued advances in medical treatment, pediatric CKD remains an unremitting,
burdensome condition characterized by decreased quality of life and earlier death. These …

Trials in children with chronic kidney disease do not consistently report outcomes that are
critically important to patients and caregivers. This can diminish the relevance and reliability …

Abstract Background The Patient Reported Outcomes Measurement Information System
(PROMIS) II is a prospective study that evaluates patient reported outcomes in pediatric …

There is scant literature describing the effect of glomerular disease on health-related quality
of life (HRQOL). The Cure Glomerulonephropathy study (CureGN) is an international …

Purpose Previous studies provided evidence for the validity of the PROMIS Pediatric
measures in cross-sectional studies. This study evaluated the ability of the PROMIS …

ABSTRACT Background The Patient-Reported Outcomes Measurement Information System
(PROMIS®) has been recommended for computerized adaptive testing (CAT) of health …

Background Children with chronic kidney disease (CKD), requiring dialysis or kidney
transplantation, have a mortality rate of up to 30-fold higher than the general aged-matched …

There is increasing interest in the integration of patient-reported outcomes (PROs) into
health care research and clinical practice for the benefit of patients with end-stage kidney …