Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta …

N Ashok, D Hughes, S Yardley - Palliative medicine, 2023 - journals.sagepub.com
Background: People with diagnoses of intellectual disability or serious mental illness have
higher mortality rates due to physical comorbidities; better understanding is needed to guide …

Enhancing Disability Nursing Practice in Australia: Addressing Educational Preparedness

N Jojo, RL Wilson - International Journal of Mental Health …, 2024 - Wiley Online Library
People with intellectual disabilities (IDs) face significant health challenges, including poor
outcomes, limited access to health care, and a 26‐year life expectancy gap compared with …

Improvement of palliative care for people with intellectual disabilities: A multi‐site evaluation

AJE De Veer, H Voss, AL Francke… - Journal of Applied …, 2024 - Wiley Online Library
Background To improve the quality of palliative care, six evidence‐based tools were
implemented in 10 care services specialised in care for people with intellectual disabilities …

A Qualitative Exploration of Healthcare Workers' Experiences of End of Life Care for People With an Intellectual Disability

M McCarron, E Burke, PM Callion… - Journal of Advanced …, 2024 - Wiley Online Library
Aim To explore healthcare workers' experiences of end of life care for people with an
intellectual disability. Design A descriptive qualitative study. Method Semi‐structured …

[图书][B] Learning Disability Nursing: Developing Professional Practice

R Northway, P Hopes - 2022 - books.google.com
Explores all aspects of professional development in learning disability nursing from the
foundations to advanced practice. Key themes running through the book include the …

Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences

R Couvrette, É Milot, G Fortin - Journal of Social Work in End-of …, 2024 - Taylor & Francis
In developed countries, there has been an increase in the longevity of adults with intellectual
disabilities. In the later stages of their lives, people with intellectual disability have specific …

End-of-life issues and support needs of people with profound intellectual and multiple disability

H Voss, J Watson, MJ Bloomer - End of life and people with intellectual and …, 2022 - Springer
Throughout life people with profound intellectual and multiple disability (PIMD) are likely to
experience multiple complex and life-threatening conditions, creating a need for decision …

“What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”: exploring care relationships at the end of life in two life …

P Jacobs, E Quayle… - … Journal of Care …, 2023 - bristoluniversitypressdigital.com
Old age is still an under-researched stage in the lives of people with a learning disability.
Providing support to people towards the end of their lives can be challenging for services …

Navigating End-of-Life Needs for a Person With Intellectual Disabilities and Their Caregivers

CM Moore, J Kates - Journal of Hospice & Palliative Nursing, 2022 - journals.lww.com
People with intellectual disabilities (IDs) are living longer, with many experiencing significant
barriers to accessing palliative care and hospice services. Families, caregivers, and direct …

How People with Intellectual Disability Are Dying and Implications for Quality Care

J Bernal, MY Wiese, S Todd - End of Life and People with Intellectual and …, 2022 - Springer
The characteristics of quality end-of-life care for people with intellectual disability are
becoming increasingly clear. The research also shows the urgent and growing need for …