Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta …
N Ashok, D Hughes, S Yardley - Palliative medicine, 2023 - journals.sagepub.com
Background: People with diagnoses of intellectual disability or serious mental illness have
higher mortality rates due to physical comorbidities; better understanding is needed to guide …
higher mortality rates due to physical comorbidities; better understanding is needed to guide …
Enhancing Disability Nursing Practice in Australia: Addressing Educational Preparedness
People with intellectual disabilities (IDs) face significant health challenges, including poor
outcomes, limited access to health care, and a 26‐year life expectancy gap compared with …
outcomes, limited access to health care, and a 26‐year life expectancy gap compared with …
Improvement of palliative care for people with intellectual disabilities: A multi‐site evaluation
AJE De Veer, H Voss, AL Francke… - Journal of Applied …, 2024 - Wiley Online Library
Background To improve the quality of palliative care, six evidence‐based tools were
implemented in 10 care services specialised in care for people with intellectual disabilities …
implemented in 10 care services specialised in care for people with intellectual disabilities …
A Qualitative Exploration of Healthcare Workers' Experiences of End of Life Care for People With an Intellectual Disability
M McCarron, E Burke, PM Callion… - Journal of Advanced …, 2024 - Wiley Online Library
Aim To explore healthcare workers' experiences of end of life care for people with an
intellectual disability. Design A descriptive qualitative study. Method Semi‐structured …
intellectual disability. Design A descriptive qualitative study. Method Semi‐structured …
[图书][B] Learning Disability Nursing: Developing Professional Practice
R Northway, P Hopes - 2022 - books.google.com
Explores all aspects of professional development in learning disability nursing from the
foundations to advanced practice. Key themes running through the book include the …
foundations to advanced practice. Key themes running through the book include the …
Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences
R Couvrette, É Milot, G Fortin - Journal of Social Work in End-of …, 2024 - Taylor & Francis
In developed countries, there has been an increase in the longevity of adults with intellectual
disabilities. In the later stages of their lives, people with intellectual disability have specific …
disabilities. In the later stages of their lives, people with intellectual disability have specific …
End-of-life issues and support needs of people with profound intellectual and multiple disability
H Voss, J Watson, MJ Bloomer - End of life and people with intellectual and …, 2022 - Springer
Throughout life people with profound intellectual and multiple disability (PIMD) are likely to
experience multiple complex and life-threatening conditions, creating a need for decision …
experience multiple complex and life-threatening conditions, creating a need for decision …
“What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”: exploring care relationships at the end of life in two life …
P Jacobs, E Quayle… - … Journal of Care …, 2023 - bristoluniversitypressdigital.com
Old age is still an under-researched stage in the lives of people with a learning disability.
Providing support to people towards the end of their lives can be challenging for services …
Providing support to people towards the end of their lives can be challenging for services …
Navigating End-of-Life Needs for a Person With Intellectual Disabilities and Their Caregivers
People with intellectual disabilities (IDs) are living longer, with many experiencing significant
barriers to accessing palliative care and hospice services. Families, caregivers, and direct …
barriers to accessing palliative care and hospice services. Families, caregivers, and direct …
How People with Intellectual Disability Are Dying and Implications for Quality Care
The characteristics of quality end-of-life care for people with intellectual disability are
becoming increasingly clear. The research also shows the urgent and growing need for …
becoming increasingly clear. The research also shows the urgent and growing need for …