Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Advances in both public health and medical interventions have resulted in a reduction in
childhood mortality worldwide over the last few decades; however, children still have life …

Background: Experiential studies in paediatric palliative care are needed to enable an
ongoing international agenda which supports the development of responsive family …

Life-limiting conditions in children in specialized pediatric palliative care (PPC) are manifold.
The “Together for Short Lives”(TfSL) association established four disease categories, which …

Background: The interest in outcome measurement in pediatric palliative care is rising. To
date, the majority of studies investigating relevant outcomes of pediatric palliative care focus …

Context Specialized pediatric palliative home care (SPPHC) is the main pediatric palliative
care structure in Germany. Detailed data on patient characteristics and care are sparse …

Objective Pediatric patients have different diseases and outcomes than adults; however,
existing phecodes do not capture the distinctive pediatric spectrum of disease. We aim to …

Background While the populations of children who can benefit from paediatric palliative care
(PPC) have been broadly defined, identifying individual patients to receive PPC has been …

Background Pain is one of the most common symptoms in children and young people (CYP)
with life‐limiting conditions (LLCs) which include a wide range of diagnoses including …

Background Although continuity of care in paediatric palliative care (PPC) is considered to
be an essential element of quality of care, it's implementation is challenging. In Belgium, five …