AL Amyloidosis for Cardiologists: Awareness, Diagnosis, and Future Prospects: JACC: CardioOncology State-of-the-Art Review

AD Wechalekar, M Fontana, CC Quarta, M Liedtke - Cardio Oncology, 2022 - jacc.org
Amyloid light chain (AL) amyloidosis is a rare, debilitating, often fatal disease. Symptoms of
cardiomyopathy are common presenting features, and patients often are referred to …

Health-related quality of life instruments for clinical trials in AL amyloidosis: report from the Amyloidosis Forum HRQOL Working Group

AA Rizio, MK White, A D'Souza, K Hsu… - Patient Related …, 2023 - Taylor & Francis
Systemic AL (light chain) amyloidosis is a rare protein misfolding disorder associated with
plasma cell dyscrasia affecting various organs leading to organ dysfunction and failure. The …

A cross-sectional study of patient-reported outcomes and symptom burden using PROMIS and PRO-CTCAE measures in light chain amyloidosis

A D'Souza, A Szabo, I Akinola, M Finkel… - Quality of Life Research, 2023 - Springer
Background We conducted a cross-sectional study to characterize health-related quality of
life and symptom burden in individuals living with light chain (AL) amyloidosis. Methods …

Development of a conceptual model of patient-reported outcomes in light chain amyloidosis: a qualitative study

A D'Souza, J Myers, R Cusatis, A Dispenzieri… - Quality of Life …, 2022 - Springer
Background Light chain (AL) amyloidosis is a plasma cell neoplasm associated with high
early mortality and severe morbidity that can cause severe disability. We explored the impact …

免疫球蛋白轻链型心肌淀粉样变性临床分析

王立明, 田颖, 赵蕾, 杨新春 - 中国全科医学, 2020 - chinagp.net
背景免疫球蛋白轻链型心肌淀粉样变性(AL-CA) 进展快, 病死率高, 但目前对其临床特点认识
不足. 目的总结AL-CA 患者临床资料, 提高临床认知. 方法回顾性分析2012 年1 月—2016 年12 …

Clinical Analysis of Immunoglobulin Amyloid Light-chain Cardiac Amyloidosis

L WANG, Y TIAN, L ZHAO, X YANG - Chinese General Practice, 2020 - chinagp.net
Background The immunoglobulin amyloid light-chain cardiac amyloidosis (AL-CA) has a
rapid progress and a high mortality rate, but its clinical characteristics are not fully …

[PDF][PDF] Development of a Conceptual Framework of Patient-reported Outcomes in Light Chain Amyloidosis: A Qualitative Study

A D'Souza, J Myers, R Cusatis, A Dispenzieri, M Finkel… - 2021 - scholar.archive.org
Background Light chain (AL) amyloidosis is a plasma cell neoplasm associated with high
early mortality and severe morbidity that can cause severe disability. We explored the impact …

Cardiac amyloidosis: a review

A Baska, J Kazik, D Bojczuk, M Racinowski, K Leis… - 2019 - repozytorium.umk.pl
Cardiac amyloidosis is a type of amyloidosis in which one of the affected organs is the heart.
The disease is characterized by the formation of protein aggregates between the cells of the …