[HTML][HTML] Down syndrome and congenital heart disease: perioperative planning and management

DR Delany, SS Gaydos, DA Romeo… - Journal of Congenital …, 2021 - Springer
Approximately 50% of newborns with Down syndrome have congenital heart disease. Non-
cardiac comorbidities may also be present. Many of the principles and strategies of …

[HTML][HTML] Inequitable access to transplants: adults with impaired decision-making capacity

RL Thom, A Dalle-Ave, EM Bunnik… - Transplant …, 2022 - frontierspartnerships.org
Inequitable access to deceased donor organs for transplantation has received considerable
scrutiny in recent years. Emerging evidence suggests patients with impaired decision …

[HTML][HTML] Access to transplantation for persons with intellectual disability: Strategies for nondiscrimination

A Chen, M Ahmad, A Flescher, WL Freeman… - American Journal of …, 2020 - Elsevier
Disqualifying patients with intellectual disabilities (ID) from transplantation has received
growing attention from the media, state legislatures, the Office of Civil Rights, and recently …

Comparing kidney transplant rates and outcomes among adults with and without intellectual and developmental disabilities

BN Hand, JM Hyer, A Schenk, A Coyne… - JAMA …, 2023 - jamanetwork.com
Importance Improving equity in organ transplant access for people with intellectual and
developmental disabilities (IDD) is a topic of social discourse in mainstream media, state …

Ethics of organ transplantation in persons with intellectual disability

LF Ross - The Journal of Pediatrics, 2021 - Elsevier
Historically, individuals with intellectual disability and end-stage organ disease were
discriminated against by transplant professionals and often excluded from transplantation …

Prevalence and long-term outcomes of solid organ transplant in children with intellectual disability

A Wightman, MC Bradford, E Hsu, HL Bartlett… - The Journal of …, 2021 - Elsevier
Objectives To describe the prevalence and long-term outcomes of kidney, liver, and heart
transplant for children with an intellectual disability. Study design We performed a …

Fairness, severe intellectual disability, and the special case of transplantation

A Wightman, A Goldberg… - Pediatric transplantation, 2018 - Wiley Online Library
Children with severe intellectual disability have historically been excluded from solid organ
transplantation. The purpose of this article was to review the arguments for excluding this …

The continuing need to combat disability discrimination in organ transplantation

D Stahl - Surgery, 2022 - Elsevier
The continuing need to combat disability discrimination in organ transplantation -
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The multifaceted role of neuropsychology in pediatric solid organ transplant: preliminary guidelines and strategies for clinical practice

EM Turner, AR Cassidy, KE Rea… - Child …, 2024 - Taylor & Francis
The incidence of pediatric solid organ transplantation (SOT) has increased in recent
decades due to medical and surgical advances as well as improvements in organ …

Long‐Term Outcomes After Lung Transplantation in Children With Intellectual Disabilities

JY Lee, DM Mullis, RS Zawadzki… - Pediatric …, 2024 - Wiley Online Library
ABSTRACT Background The United Network for Organ Sharing (UNOS) started recording
data on intellectual disability status in 2008. This study aimed to characterize the long‐term …