[HTML][HTML] Down syndrome and congenital heart disease: perioperative planning and management
DR Delany, SS Gaydos, DA Romeo… - Journal of Congenital …, 2021 - Springer
Approximately 50% of newborns with Down syndrome have congenital heart disease. Non-
cardiac comorbidities may also be present. Many of the principles and strategies of …
cardiac comorbidities may also be present. Many of the principles and strategies of …
[HTML][HTML] Inequitable access to transplants: adults with impaired decision-making capacity
RL Thom, A Dalle-Ave, EM Bunnik… - Transplant …, 2022 - frontierspartnerships.org
Inequitable access to deceased donor organs for transplantation has received considerable
scrutiny in recent years. Emerging evidence suggests patients with impaired decision …
scrutiny in recent years. Emerging evidence suggests patients with impaired decision …
[HTML][HTML] Access to transplantation for persons with intellectual disability: Strategies for nondiscrimination
A Chen, M Ahmad, A Flescher, WL Freeman… - American Journal of …, 2020 - Elsevier
Disqualifying patients with intellectual disabilities (ID) from transplantation has received
growing attention from the media, state legislatures, the Office of Civil Rights, and recently …
growing attention from the media, state legislatures, the Office of Civil Rights, and recently …
Comparing kidney transplant rates and outcomes among adults with and without intellectual and developmental disabilities
Importance Improving equity in organ transplant access for people with intellectual and
developmental disabilities (IDD) is a topic of social discourse in mainstream media, state …
developmental disabilities (IDD) is a topic of social discourse in mainstream media, state …
Ethics of organ transplantation in persons with intellectual disability
LF Ross - The Journal of Pediatrics, 2021 - Elsevier
Historically, individuals with intellectual disability and end-stage organ disease were
discriminated against by transplant professionals and often excluded from transplantation …
discriminated against by transplant professionals and often excluded from transplantation …
Prevalence and long-term outcomes of solid organ transplant in children with intellectual disability
Objectives To describe the prevalence and long-term outcomes of kidney, liver, and heart
transplant for children with an intellectual disability. Study design We performed a …
transplant for children with an intellectual disability. Study design We performed a …
Fairness, severe intellectual disability, and the special case of transplantation
A Wightman, A Goldberg… - Pediatric transplantation, 2018 - Wiley Online Library
Children with severe intellectual disability have historically been excluded from solid organ
transplantation. The purpose of this article was to review the arguments for excluding this …
transplantation. The purpose of this article was to review the arguments for excluding this …
The continuing need to combat disability discrimination in organ transplantation
D Stahl - Surgery, 2022 - Elsevier
The continuing need to combat disability discrimination in organ transplantation -
ScienceDirect Skip to main contentSkip to article Elsevier logo Journals & Books Search …
ScienceDirect Skip to main contentSkip to article Elsevier logo Journals & Books Search …
The multifaceted role of neuropsychology in pediatric solid organ transplant: preliminary guidelines and strategies for clinical practice
EM Turner, AR Cassidy, KE Rea… - Child …, 2024 - Taylor & Francis
The incidence of pediatric solid organ transplantation (SOT) has increased in recent
decades due to medical and surgical advances as well as improvements in organ …
decades due to medical and surgical advances as well as improvements in organ …
Long‐Term Outcomes After Lung Transplantation in Children With Intellectual Disabilities
JY Lee, DM Mullis, RS Zawadzki… - Pediatric …, 2024 - Wiley Online Library
ABSTRACT Background The United Network for Organ Sharing (UNOS) started recording
data on intellectual disability status in 2008. This study aimed to characterize the long‐term …
data on intellectual disability status in 2008. This study aimed to characterize the long‐term …