The United States has long made substantial investments in clinical research with the goal
of improving the health and well-being of our nation. There is no doubt that these …

Background Non-alcoholic steatohepatitis (NASH) is a progressive form of non-alcoholic
fatty liver disease characterized by excessive liver fat accumulation, inflammation, cell injury …

Background 'Patient engagement'involves meaningful collaboration between researchers
and 'patient partners' to co-create research. It helps ensure that research being conducted is …

Experiential knowledge is today increasingly valued in health‐care practices, public health
policies and health research and education programs. However, despite popular and …

The approach to patient engagement (PE) in drug development has changed rapidly due to
many factors, including the complexity of innovative drugs and the need to demonstrate …

Introduction Patients with generalized myasthenia gravis (gMG) experience functional
impairment due to MG symptoms. This study aimed to assess, from the patient perspective …

Introduction: Patient-reported Experience Measures (PREMs) are validated questionnaires,
that gather patients' and families' views of their experience receiving care and are commonly …

Background Patient engagement in research refers to collaboration between researchers
and patients (ie, individuals with lived experience including informal caregivers) in …

Objective The objective of this study was to explore the outcomes of research engagement
(patient engagement, PE) in the context of qualitative research. Design We observed …

Background We evaluated studies published in high-impact psychiatry journals to assess (1)
the proportion that reported in articles whether they engaged people with lived …