Generic health-related quality-of-life assessment in children and adolescents: methodological considerations

U Ravens-Sieberer, M Erhart, N Wille, R Wetzel… - …, 2006 - Springer
The health-related quality of life (HR-QOL) of children and adolescents is increasingly
considered a relevant topic for research. Instruments to assess quality of life in children and …

Quality of life among adolescents with cerebral palsy: what does the literature tell us?

MH Livingston, PL Rosenbaum… - … Medicine & Child …, 2007 - Wiley Online Library
This review describes trends in quality of life (QOL) and health‐related quality of life
(HRQOL) among adolescents with cerebral palsy (CP). Twenty original articles were …

Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL™ 4.0 …

JW Varni, CA Limbers, TM Burwinkle - Health and quality of life outcomes, 2007 - Springer
Background Health-related quality of life (HRQOL) measurement has emerged as an
important health outcome in clinical trials, clinical practice improvement strategies, and …

How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL™ 4.0 …

JW Varni, CA Limbers, TM Burwinkle - Health and quality of life outcomes, 2007 - Springer
Background The last decade has evidenced a dramatic increase in the development and
utilization of pediatric health-related quality of life (HRQOL) measures in an effort to improve …

Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales

J Cremeens, C Eiser, M Blades - Health and quality of life outcomes, 2006 - Springer
Background In situations where children are unable or unwilling to respond for themselves,
measurement of quality of life (QOL) is often obtained by parent proxy-report. However the …

Development of six PROMIS pediatrics proxy-report item banks

DE Irwin, HE Gross, BD Stucky, D Thissen… - Health and quality of life …, 2012 - Springer
Background Pediatric self-report should be considered the standard for measuring patient
reported outcomes (PRO) among children. However, circumstances exist when the child is …

Effects of socioeconomic status, parental stress, and family support on children's physical and emotional health during the COVID-19 pandemic

S Scrimin, LY Mastromatteo, A Hovnanyan… - Journal of Child and …, 2022 - Springer
In the current study, we conduct an exploratory study on children's emotional and physical
health in response to the COVID-19 pandemic. The direct and interactive effects of parental …

Literature review: health-related quality of life measurement in pediatric oncology: hearing the voices of the children

JW Varni, C Limbers… - Journal of pediatric …, 2007 - academic.oup.com
Objectives The objective of this literature review is to provide an overview of the evidence for
pediatric patient self-report in pediatric oncology. Methods A review of the general literature …

Health-related quality of life assessment in Indonesian childhood acute lymphoblastic leukemia

MN Sitaresmi, S Mostert, CM Gundy, Sutaryo… - Health and quality of life …, 2008 - Springer
Abstract Background Most studies on Health-related Quality of Life (HRQOL) in children with
cancer were conducted in developed countries. The aims of this study were to assess the …

Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review

LC Pinheiro, M McFatrich, N Lucas, JS Walker… - Quality of life …, 2018 - Springer
Objective Previous work in pediatric oncology has found that clinicians and parents tend to
under-report the frequency and severity of treatment-related symptoms compared to child …