Background Family caregivers are key actors in the ageing society. They are mediators
between practitioners and patients and usually provide also essential daily services for the …

Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK)
and internationally to report and monitor patients' subjective assessments of their symptoms …

Introduction Consumer and community involvement (CCI) encompasses the range of
consumer engagement activities across the research cycle. Research advisory groups …

Background Involving consumers in systematic reviews can make them more valuable and
help achieve goals around transparency. Systematic reviews are technically complex and …

Background Co-production has been widely recognised as a potential means to reduce the
dissatisfaction of citizens, the inefficacy of service providers, and conflicts in relations …

Background In the past decade, patient-oriented research (POR) has been at the forefront of
healthcare research in Canada because it has the potential to make research more …

Abstract Background 'Getting Involved in Research'was co-created and delivered by a multi-
organisational group to provide an accessible introduction to research for those with lived …

Methods: Point-of-care health professionals who completed a fellowship capacity building
program between 2014 and 2018 that provided an opportunity to learn about patient …

Background Efforts have been made by health research granting agencies to bring research
closer to patients' concerns. In Canada, such efforts were formalized in 2011 with the …

This book series, Advances in Research Ethics and Integrity, grew out of foundational work
with a group of Fellows of the UK Academy of Social Sciences (AcSS) who were all …