Human tissue has been stored and used for research on a regular basis for more than 80
years. During the 1990s, collections of human tissue suddenly became framed as ethical …

Informed consent is a key feature of risk management in medical research. This review
outlines the history of the consent requirement and describes its diverse forms through a …

Background Research is fundamental to improving the quality of health care. The need for
regulation of research is clear. However, the bureaucratic complexity of research …

People in extraordinary situations are vulnerable. As research participants, they are
additionally threatened by abuse or exploitation and the possibility of harm through …

Background This paper proposes a refocusing of consent for clinical genetic testing, moving
away from an emphasis on autonomy and information provision, towards an emphasis on …

This article explores negotiations over the humanistic versus mechanized components of
care through an ethnographic account of digital phenotyping research. I focus on a US …

Abstract In recent years,“Responsible Research and Innovation”(RRI) has become a new
buzzword at the core of European science policy discourses and beyond. Using a narrative …

Neither on the level of interactions between organizations nor on the level of servicing users,
co-production has a fixed meaning. It is argued that there are different meanings that unfold …

This article introduces and reflects on a group discussion method for public engagement
exercises and for qualitative research into citizens' practices of developing and negotiating …

Near Human takes us into the borders of human and animal life. In the animal facility, fragile
piglets substitute for humans who cannot be experimented on. In the neonatal intensive care …