Context Advance care planning (ACP) intends to support person-centered medical decision-
making by eliciting patient preferences. Research has not identified significant associations …

Background: Parents of babies diagnosed with life limiting conditions in the perinatal period
face numerous challenges. Considerations include the remainder of the pregnancy, delivery …

Background Some pediatric deaths happen within minutes to days of the cause (eg,
unintentional injury, extremely preterm birth, catastrophic illness). Others occur days to years …

Objectives To develop a generalizable advance care planning (ACP) intervention for
children, adolescents, and young adults with serious illness using a multistage, stakeholder …

Good communication is central to good healthcare. As a result of poor communication
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …

Objectives Individuals dependent on long-term mechanical ventilation (LTMV) for their day-
to-day living are a heterogenous population who go through several transitions over their …

Introduction Perinatal palliative care services are increasingly available globally, offering a
range of clinical and psychological support services to families during pregnancy, in the …

Context Children with medical complexity (CMC) have multiple significant chronic health
conditions that result in functional limitations and high health care utilization. The population …

Context Children with complex chronic conditions (CCCs) have high morbidity and mortality.
While these children often receive palliative care services, little is known about parental …

Importance Advance care planning (ACP) is the process of discussing values and
preferences for care to help inform medical decision-making. Children with medical …