Background Parents' knowledge of their child with profound intellectual and multiple
disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this …

Self‐determination is a human right that people with profound intellectual and multiple
disabilities (PIMD) risk not being granted. Exploration of such topics and research in general …

Information and Communication Technology (ICT) has revolutionized the lives of persons
with disabilities globally through opportunities for improved social inclusion. Technology …

This article proposes the quality of life (QOL) construct as a framework from which to develop
useful indicators to operationalize, measure, and implement the Articles of the Convention …

With a focus on the use of narrative approaches, this article is a commentary on decision-
making support for people with profound intellectual and multiple disability (PIMD) at the end …

Despite a proliferation of qualitative research methods and the advancement of
augmentative and alternative communication (AAC), people with Complex Communication …

Background Advance care planning (ACP) is the process of discussing and documenting
wishes and preferences for future care. Research about ACP for people with intellectual …

Background Caring for persons with profound intellectual and multiple disabilities (PIMD)
demands specific expertise. Tacit knowledge seems to play an important role, but little is …

Background Shared decision‐making (SDM) is the process in which healthcare
professionals and patients jointly discuss and decide which care and treatment policy is to …

This chapter analyses the practice of support for decision making with adults with intellectual
disability or acquired brain injury, whom we refer to as people with cognitive disabilities. It …