Illness and prognostic understanding in patients with hematologic malignancies

TF Gray, JS Temel, A El-Jawahri - Blood reviews, 2021 - Elsevier
It is critical for patients with hematologic malignancies to have an accurate understanding of
their illness and prognosis to make informed treatment decisions. Illness and prognostic …

[HTML][HTML] Overview of prognostic factors in adult gliomas

A Sharma, JJ Graber - Annals of palliative medicine, 2021 - apm.amegroups.org
Gliomas represent the majority of malignant central nervous system tumors, with the most
aggressive subtype, glioblastoma, accounting for almost 57% of this entity. Type of glioma …

What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and …

C Spooner, B Vivat, N White, A Bruun… - Palliative …, 2023 - journals.sagepub.com
Background: Studies evaluating the impact of prognostication in advanced cancer patients
vary in the outcomes they measure, and there is a lack of consensus about which outcomes …

How much time do we have? Longitudinal perception of prognosis in newly-diagnosed high grade glioma patients and caregivers compared to clinicians

A Sharma, B Fruth, C Barrera, HN Farfour… - Journal of neuro …, 2021 - Springer
Purpose Discordant prognostic awareness (PA) can cause distress, impact goals of care
and future planning, especially in patients with high grade glioma (pwHGG) who have …

Coping with glioblastoma: prognostic communication and prognostic understanding among patients with recurrent glioblastoma, caregivers, and oncologists

LE Walsh, LC Polacek, K Panageas, A Reiner… - Journal of neuro …, 2022 - Springer
Purpose Glioblastoma (GBM) is a devastating neuro-oncologic disease with invariably poor
prognosis. Despite this, research shows patients have unrealistic perceptions of their …

Perceptions of prognosis and goal of treatment in patients with malignant gliomas and their caregivers

DA Forst, K Quain, SL Landay, M Anand… - Neuro-Oncology …, 2020 - academic.oup.com
Background Patients with malignant gliomas have a poor prognosis. However, little is known
about patients' and caregivers' understanding of the prognosis and the primary treatment …

Conceptual framework for integrating family caregivers into the health care team: a scoping review

M Raj, AL Stephenson, MJ DePuccio… - … Care Research and …, 2023 - journals.sagepub.com
More than 80% of family care partners of older adults are responsible for coordinating care
between and among providers; yet, their inclusion in the health care delivery process lacks …

A qualitative analysis of the benefits and barriers of support groups for patients with brain tumours and their caregivers

S Mallya, M Daniels, C Kanter, A Stone… - Supportive Care in …, 2020 - Springer
Purpose Brain tumours represent a significant burden for patients and caregivers. The aims
of the present study were to explore the perceived benefits of support groups for patients …

Effective communication in palliative care from the perspectives of patients and relatives: a systematic review

M Engel, MC Kars, SCCM Teunissen… - Palliative & Supportive …, 2023 - cambridge.org
ObjectivesIn palliative care, effective communication is essential to adequately meet the
needs and preferences of patients and their relatives. Effective communication includes …

[HTML][HTML] Prognostic awareness in advanced disease: a review update and concept analysis

F Kühne, M Preisler, U Goerling - Frontiers in Psychology, 2021 - frontiersin.org
Purpose Although subjective knowledge about the prognosis of an advanced disease is
extremely important for coping and treatment planning, the concept of prognostic awareness …