An integrated early care pathway for autism
J Green, K Leadbitter, J Ainsworth… - The Lancet Child & …, 2022 - thelancet.com
In this Viewpoint, we argue for the need to reconceptualise an integrated early-care
provision for autistic children in the light of their enduring support needs and relevant new …
provision for autistic children in the light of their enduring support needs and relevant new …
[HTML][HTML] Standards for the care of people with cystic fibrosis; establishing and maintaining health
This is the second in a series of four papers updating the European Cystic Fibrosis Society
(ECFS) standards for the care of people with CF. This paper focuses on establishing and …
(ECFS) standards for the care of people with CF. This paper focuses on establishing and …
Diagnosis and management of cystic fibrosis exacerbations
T Milinic, OJ McElvaney… - Seminars in respiratory and …, 2023 - thieme-connect.com
With the improving survival of cystic fibrosis (CF) patients and the advent of highly effective
cystic fibrosis transmembrane conductance regulator (CFTR) therapy, the clinical spectrum …
cystic fibrosis transmembrane conductance regulator (CFTR) therapy, the clinical spectrum …
Developing learning health systems in the UK: priorities for action
T Hardie, T Horton, N Thornton-Lee, J Home, P Pereira - 2022 - apo.org.au
Health care has, in many ways, always been a form of 'learning system'. Driven by a diverse
community of stakeholders, including health care professionals, patients and the public, a …
community of stakeholders, including health care professionals, patients and the public, a …
Airway clearance and exercise for people with cystic fibrosis: balancing longevity with life
NJ Rowbotham, TE Daniels - Pediatric Pulmonology, 2022 - Wiley Online Library
Airway clearance has been an integral part of cystic fibrosis (CF) care for almost as long as
CF has been identified as a condition. From diagnosis as a neonate through to end‐of‐life …
CF has been identified as a condition. From diagnosis as a neonate through to end‐of‐life …
A machine-learning assisted review of the use of habit formation in medication adherence interventions for long-term conditions
L Robinson, MA Arden, S Dawson… - Health Psychology …, 2024 - Taylor & Francis
Adherence to medication in long-term conditions is around 50%. The key components of
successful interventions to improve medication adherence remain unclear, particularly when …
successful interventions to improve medication adherence remain unclear, particularly when …
Telemedicine and remote monitoring in cystic fibrosis
C Edmondson, N Lechtzin - Current opinion in pulmonary …, 2023 - journals.lww.com
Telemedicine and remote monitoring in cystic fibrosis : Current Opinion in Pulmonary
Medicine Telemedicine and remote monitoring in cystic fibrosis : Current Opinion in …
Medicine Telemedicine and remote monitoring in cystic fibrosis : Current Opinion in …
[HTML][HTML] The CFHealthHub Learning Health System: Using Real-Time Adherence Data to Support a Community of Practice to Deliver Continuous Improvement in an …
RD Sandler, MJ Wildman - Healthcare, 2022 - mdpi.com
CFHealthHub is a learning health system active in over 50% of adult CF Centres in England,
supporting people with CF to develop habits of self-care around adherence to preventative …
supporting people with CF to develop habits of self-care around adherence to preventative …
Medication adherence to CFTR modulators in patients with cystic fibrosis: a systematic review
CME Hansen, AJ Breukelman… - European …, 2024 - err.ersjournals.com
Background In the last decade, a fundamental shift in the treatment of cystic fibrosis (CF)
took place due to the introduction of CF transmembrane conductance regulator (CFTR) …
took place due to the introduction of CF transmembrane conductance regulator (CFTR) …
An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT
MJ Wildman, A O'Cathain, D Hind… - Programme Grants for …, 2021 - shura.shu.ac.uk
Background People with cystic fibrosis frequently have low levels of adherence to inhaled
medications. Objectives The objectives were to develop and evaluate an intervention for …
medications. Objectives The objectives were to develop and evaluate an intervention for …