In this Viewpoint, we argue for the need to reconceptualise an integrated early-care
provision for autistic children in the light of their enduring support needs and relevant new …

This is the second in a series of four papers updating the European Cystic Fibrosis Society
(ECFS) standards for the care of people with CF. This paper focuses on establishing and …

With the improving survival of cystic fibrosis (CF) patients and the advent of highly effective
cystic fibrosis transmembrane conductance regulator (CFTR) therapy, the clinical spectrum …

Health care has, in many ways, always been a form of 'learning system'. Driven by a diverse
community of stakeholders, including health care professionals, patients and the public, a …

Airway clearance has been an integral part of cystic fibrosis (CF) care for almost as long as
CF has been identified as a condition. From diagnosis as a neonate through to end‐of‐life …

Adherence to medication in long-term conditions is around 50%. The key components of
successful interventions to improve medication adherence remain unclear, particularly when …

Telemedicine and remote monitoring in cystic fibrosis : Current Opinion in Pulmonary
Medicine Telemedicine and remote monitoring in cystic fibrosis : Current Opinion in …

CFHealthHub is a learning health system active in over 50% of adult CF Centres in England,
supporting people with CF to develop habits of self-care around adherence to preventative …

Background In the last decade, a fundamental shift in the treatment of cystic fibrosis (CF)
took place due to the introduction of CF transmembrane conductance regulator (CFTR) …

Background People with cystic fibrosis frequently have low levels of adherence to inhaled
medications. Objectives The objectives were to develop and evaluate an intervention for …