The literature on typically developing siblings of individuals with autism spectrum disorder
(ASD-Sibs) provides inconsistent results, with some studies reporting ASD-Sibs are more …

Context Most of the 20,000 US children dying of serious illnesses annually die in the
hospital. It is unknown if this hospital death predominance reflects family wishes or systemic …

Over the past three decades, we studied 184 individuals with 174 different molecular
variants of branched-chain α-ketoacid dehydrogenase activity, and here delineate essential …

Siblings of young people with chronic illness commonly undertake caring responsibilities for
their affected brother/sister, which may encourage maturation, yet may also be perceived as …

Background: Worldwide, around 21 million children would benefit from palliative care and
over 7 million babies and children die each year. Whilst provision of paediatric palliative …

Siblings of children with palliative care needs often suffer feelings of being neglected, and
their needs for information and involvement are frequently unmet. This study aims to explore …

Objective Our purpose is to answer the following question: What mechanisms or
components of programs, groups, or interventions improve psychological and social aspects …

Background When a child is given a diagnosis of cancer, the impact reverberates through
the family unit. Siblings, in particular, experience an accumulation of distress. Siblings of …

Siblings of children with chronic disorders are at increased risk of psychosocial problems.
The risk may be exacerbated when the chronic disorder is rare and limited medical …

Background Children with chronic kidney disease (CKD) and their families deal with
challenging circumstances. While numerous studies have shown that both patients and …