Neurological conditions: Prognostic communication, shared decision making, and symptom management

D Peralta, J Bogetz, ME Lemmon - Seminars in Fetal and Neonatal …, 2023 - Elsevier
Neonatal neurologic conditions represent a heterogeneous group of illnesses that can pose
significant challenges to infants, their families, and clinicians. Neonates with neurologic …

Parental presence, participation, and engagement in paediatric hospital care: A conceptual delineation

AB Harlow, L Ledbetter… - Journal of Advanced …, 2024 - Wiley Online Library
Aim To delineate between the concepts of parental presence, participation, and
engagement in paediatric hospital care. Design The concepts' uses in the literature were …

“You become a slightly better doctor”: Doctors adopting integrated medical expertise through interactions with E-patients

L Shachar - Social Science & Medicine, 2022 - Elsevier
The accessibility of information via the internet has radically altered the doctor–patient
relationship. By means of in-depth interviews with Israeli physicians from four different …

Medical team practices and interpreter alterations on family-centered rounds

VM Parente, JM Robles, M Lemmon… - Hospital …, 2024 - publications.aap.org
BACKGROUND Robust evidence demonstrates inequities in communication during family-
centered rounds for families who use a language other than English (LOE) for health care …

A Seat at the Table: Family Conferences for Infants with Neurological Conditions

KA Young, NK Field, N Nanduri, HC Glass… - Journal of Palliative …, 2024 - liebertpub.com
Objective: We aimed to characterize parents' perspectives on the value of and opportunities
to improve conferences between parents of critically ill infants and the health care team …

Seminars in Fetal & neonatal medicine: Palliative and end of life care in the NICU.

D Peralta, J Bogetz, ME Lemmon - Seminars in Fetal & Neonatal …, 2023 - europepmc.org
Neonatal neurologic conditions represent a heterogeneous group of illnesses that can pose
significant challenges to infants, their families, and clinicians. Neonates with neurologic …

Improving Parental Knowledge of Medically Complex Neonates Through Scheduled Conferences

S Mooney, S Devagiri, A Puuri, M Naylor… - American Journal of …, 2024 - journals.lww.com
Reports of parental dissatisfaction from incomplete or inconsistent information led to a
quality improvement (QI) project to establish planned family conferences at 10 days and 1 …

Diagnosis and Management of Acute Symptomatic Seizures in Neonates

JC Keene, HC Glass - Neonatology Questions and …, 2023 - books.google.com
Seizures occur during the neonatal period in approximately 2 to 4 per 1000 live births. 1–4
Seizures are a neurologic emergency: they are often caused by acute brain injury or …

[PDF][PDF] Postdoctoral Training

PA Ubel - peterubel.com
90. Baron J, Asch DA, Fagerlin A, Jepson C, Loewenstein G, Riis J, Stineman MG, Ubel PA.
Effect of assessment method on the discrepancy between judgments of health disorders …

[PDF][PDF] Trends in Pediatric Palliative Care Research (TPPCR) 2021; Issue# 8: Commentary on Barks et al.

J St Louis - osf.io
Trends in Pediatric Palliative Care Research (TPPCR) 2021; Issue #8: Commentary on Barks et
al. Julia St Louis, RN Alberta Chil Page 1 Trends in Pediatric Palliative Care Research (TPPCR) …