[HTML][HTML] Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR patient-centered special interest group

RL Harrington, ML Hanna, EM Oehrlein, R Camp… - Value in Health, 2020 - Elsevier
Objectives Lack of clarity on the definition of “patient engagement” has been highlighted as
a barrier to fully implementing patient engagement in research. This study identified themes …

International palliative care research priorities: a systematic review

F Hasson, E Nicholson, D Muldrew, O Bamidele… - BMC palliative …, 2020 - Springer
Background There has been increasing evidence and debate on palliative care research
priorities and the international research agenda. To date, however, there is a lack of …

[HTML][HTML] A health economics approach to US value assessment frameworks—introduction: an ISPOR Special Task Force report [1]

PJ Neumann, RJ Willke, LP Garrison Jr - Value in Health, 2018 - Elsevier
Concerns about rising spending on prescription drugs and other areas of health care have
led to multiple initiatives in the United States designed to measure and communicate the …

[HTML][HTML] Identifying the need for good practices in health technology assessment: summary of the ISPOR HTA Council Working Group Report on Good Practices in …

FB Kristensen, D Husereau, M Huić, M Drummond… - Value in health, 2019 - Elsevier
The systematic use of evidence to inform healthcare decisions, particularly health
technology assessment (HTA), has gained increased recognition. HTA has become a …

The promise of Immuno-oncology: implications for defining the value of cancer treatment

HL Kaufman, MB Atkins, P Subedi, J Wu… - … for immunotherapy of …, 2019 - Springer
The rapid development of immuno-oncology (IO) therapies for multiple types of cancer has
transformed the cancer treatment landscape and brightened the long-term outlook for many …

Using patient perspectives to inform better clinical trial design and conduct: current trends and future directions

SD Faulkner, F Somers, M Boudes, B Nafria… - Pharmaceutical …, 2023 - Springer
The approach to patient engagement (PE) in drug development has changed rapidly due to
many factors, including the complexity of innovative drugs and the need to demonstrate …

Patient-centered core impact sets: what they are and why we need them

EM Perfetto, EM Oehrlein, TR Love, S Schoch… - The Patient-Patient …, 2022 - Springer
A quote attributed to Mark Twain states,“What gets us into trouble is not what we don't know.
It's what we know for sure that just ain't so.” The growing focus on patient centricity has …

Putting stakeholder engagement at the center of health economic modeling for health technology assessment in the United States

RZ Xie, EF Malik, MT Linthicum, JL Bright - Pharmacoeconomics, 2021 - Springer
While evidence generated from health economic (HE) models is being used more commonly
in health technology assessment (HTA) in the US, it is not consistently adopted by different …

Family caregivers' experiences of end‐of‐life care in the acute hospital setting. A qualitative study

SB Robertson, E Hjörleifsdóttir… - … journal of caring …, 2022 - Wiley Online Library
Background Acute hospital settings are generally not considered adequate places for end‐
of‐life care, but terminally ill patients will continue to die in acute medical wards in the …

Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative

K Deane, L Delbecque, O Gorbenko… - BMJ …, 2019 - innovations.bmj.com
Introduction Meaningful patient engagement (PE) can enhance medicines' development.
However, the current PE landscape is fragmentary and lacking comprehensive guidance …