[HTML][HTML] Women's experiences receiving abnormal prenatal chromosomal microarray testing results

BA Bernhardt, D Soucier, K Hanson, MS Savage… - Genetics in …, 2013 - nature.com
Purpose: Genomic microarrays can detect copy-number variants not detectable by
conventional cytogenetics. This technology is diffusing rapidly into prenatal settings even …

A concept analysis of parental uncertainty in illness of an infant

KJ Malin, TS Johnson - MCN: The American Journal of Maternal …, 2019 - journals.lww.com
Background: The concept of uncertainty in illness has been well described and applied to
many different areas of nursing and other disciplines. Specifically, parental uncertainty in …

Meta-analysis of anxiety in parents of young people with chronic health conditions

M Pinquart - Journal of Pediatric Psychology, 2019 - academic.oup.com
Objective Chronic health conditions are often associated with uncertainty and threats which
may cause anxiety in the family members. The present meta-analysis analyzed whether …

[HTML][HTML] Health-care providers' perspectives on uncertainty generated by variant forms of newborn screening targets

PJ Azzopardi, R Upshur, S Luca, V Venkataramanan… - Genetics in …, 2020 - Elsevier
Purpose Despite the public health successes of newborn bloodspot screening, uncertainty
associated with variant forms of primary screening targets has led to discrepancies in …

[HTML][HTML] Healthcare professionals' and parents' experiences of the confirmatory testing period: a qualitative study of the UK expanded newborn screening pilot

L Moody, L Atkinson, I Kehal, JR Bonham - BMC pediatrics, 2017 - Springer
Background With further expansion of the number of conditions for which newborn
screening can be undertaken, it is timely to consider the impact of positive screening results …

[HTML][HTML] Identification of illness uncertainty in veterinary oncology: implications for service

DL Stoewen, JB Coe, C MacMartin… - Frontiers in Veterinary …, 2019 - frontiersin.org
Uncertainty has been identified as the central psychological feature of illness experiences,
necessitating a variety of coping strategies to effectively manage it and successfully adapt …

[HTML][HTML] An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital …

KW Harris, K Schweiberger, A Kavanaugh-McHugh… - PEC innovation, 2024 - Elsevier
Objective Families who receive a prenatal diagnosis of complex congenital heart disease
(cCHD) often experience severe psychological distress and identify uncertainty as a key …

[PDF][PDF] Kanser tanılı hastanın Merley Mishel'in hastalıkta belirsizlik kuramına göre hemşirelik bakımı

D Çınar, Y Yıldırım, FŞ Aykar - Acıbadem Üniversitesi Sağlık …, 2020 - dergipark.org.tr
Kanser tanısı almak, sınırlı ve sarsıcı tedavi seçenekleri, yaşanan kayıplar, nüksetme
korkusu ve belirsiz bir ömür beklentisi hastaların bilinmezlik yaşamalarına ve yüksek …

CUIDAR A LA PERSONA CON ENFERMEDAD RARA. REVISIÓN INTEGRATIVA

VFJ Ocampo, RNZ Bermeo… - Enfermería …, 2024 - revistas.uta.edu.ec
Resumen área temática del cuidador de las personas con enfermedades raras y determinar
las tendencias y los retos para la investigación en enfermería. Métodos: Revisión integrada …

CUIDAR A LA PERSONA CON ENFERMEDAD RARA. REVISIÓN INTEGRATIVA.

VF Jiménez Ocampo… - … , Docencia y Gestiin, 2024 - search.ebscohost.com
Objetivo: Conocer el estado actual de desarrollo del área temática del cuidador de las
personas con enfermedades raras y determinar las tendencias y los retos para la …