[HTML][HTML] Development of the preferred components for co-design in research guideline and checklist: protocol for a scoping review and a modified Delphi process

SEP Munce, CS Gray, BC Pomeroy… - JMIR research …, 2023 - researchprotocols.org
Background: There is increasing evidence that co-design can lead to more engaging,
acceptable, relevant, feasible, and even effective interventions. However, no guidance is …

Intersectionality as a theoretical framework for researching health inequities in chronic pain

C Macgregor, J Walumbe, E Tulle… - British Journal of …, 2023 - journals.sagepub.com
Chronic pain is experienced unequally by different population groups; we outline examples
from the pain literature of inequities related to gender, ethnicity, socioeconomic and …

Implementing the patient partnership approach to quality improvement of care and services: A multiple case study protocol

T Deslauriers, I Gaboury, M Jackson, B Vachon - Plos one, 2024 - journals.plos.org
Context Patient and family partners are being increasingly engaged worldwide in processes
aimed at the quality improvement (QI) of healthcare services. There is also growing interest …

Patients as partners in research: how to talk about compensation with patient partners

DP Richards, I Jordan, K Strain, Z Press - journal of orthopaedic & sports …, 2020 - jospt.org
This editorial builds on the previous editorials in the patient partnership series, and aims to
share practical advice related to compensation for patient research partners. In the authors' …

Enhancing patient research partner engagement: Research in psoriatic arthritis

N Goel - Best Practice & Research Clinical Rheumatology, 2021 - Elsevier
The perspective from individuals with psoriatic arthritis (PsA) can be beneficial to PsA
research, increasing the likelihood that the results are meaningful and relevant to PsA …

Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the “Your Voice” study

CE Schwartz, S Jackson, J Valentine, N Miller… - Orphanet Journal of …, 2023 - Springer
Background Patient-centered research has emerged as critically important for
understanding the impact of treatments on key stakeholders. The subjective experience of …

Involving people with lived experience as partners in musculoskeletal research: lessons from a survey of Aotearoa/New Zealand musculoskeletal researchers

J Haribhai-Thompson, N Dalbeth, S Stewart… - journal of orthopaedic & …, 2022 - jospt.org
Involving patients as partners in research enables their concerns, perspectives, lived
experiences, and priorities to be integrated into research. Involving patient partners …

ENTRUST-PE: An Integrated Framework for Trustworthy Pain Evidence

N O'Connell, GC Richards, N Soliman… - 2024 - nottingham-repository.worktribe.com
The personal, social and economic burden of chronic pain is enormous. Yet patients with
chronic pain, clinicians and the public are often poorly served by an evidence architecture …

Patient-partner engagement at the centre de recherche du CHUS in the province of Québec, Canada: from an intuitive methodology to outreach after three years of …

D Boutin, SC Mastine, L Beaubien… - Research Involvement …, 2021 - Springer
Background Medical societies and funding agencies strongly recommend that patients be
included as partners in research publications and grant applications. Although this “top …

Experiências e percepções de indivíduos com dor no ombro após um tratamento com telerreabilitação: um estudo qualitativo

GR Luiz - 2024 - repositorio.ufscar.br
Introdução: A alta incidência de dor no ombro na população geral em conjunto com os
desafios encontrados no sistema público de saúde reforçam a necessidade de alternativas …