Generations of genomes: advances in paleogenomics technology and engagement for Indigenous people of the Americas
For decades, scientists have collected genomic information from Indigenous peoples and
their ancestors with the goal of elucidating human migration events, understanding ancestral …
their ancestors with the goal of elucidating human migration events, understanding ancestral …
A set of principles and practical suggestions for equitable fieldwork in biology
V Ramírez-Castañeda, EP Westeen… - Proceedings of the …, 2022 - National Acad Sciences
Field biology is an area of research that involves working directly with living organisms in
situ through a practice known as “fieldwork.” Conducting fieldwork often requires complex …
situ through a practice known as “fieldwork.” Conducting fieldwork often requires complex …
Health-related participatory research in American Indian and Alaska native communities: a scoping review
RB Woodbury, S Ketchum, VY Hiratsuka… - International journal of …, 2019 - mdpi.com
A scoping review was conducted to assess the state of the literature on health-related
participatory research involving American Indian and Alaska Native communities. Online …
participatory research involving American Indian and Alaska Native communities. Online …
Chasing ghosts: race, racism, and the future of microbiome research
In this article, we argue that a careful examination of human microbiome science's
relationship with race and racism is necessary to foster equitable social and ecological …
relationship with race and racism is necessary to foster equitable social and ecological …
Extending research protections to tribal communities
B Saunkeah, JA Beans, MT Peercy… - The American Journal …, 2021 - Taylor & Francis
The history of research in American Indian/Alaska Native (AI/AN) communities has been
marked by unethical practices, resulting in mistrust and reluctance to participate in research …
marked by unethical practices, resulting in mistrust and reluctance to participate in research …
An Alaska Native community's views on genetic research, testing, and return of results: Results from a public deliberation
As genetic testing technology advances, genetic testing will move into standard practice in
the primary care setting. Genetic research, testing, and return of results are complex topics …
the primary care setting. Genetic research, testing, and return of results are complex topics …
Ethical considerations for genetic research in low-income countries: perceptions of informed consent, data sharing, and expectations in Nicaragua
IS Delgado, A Outterson, V Ramesh… - European Journal of …, 2023 - nature.com
Genetic research presents numerous ethical, legal, and social implications (ELSI),
particularly when the research involves collaborations between investigators in high and low …
particularly when the research involves collaborations between investigators in high and low …
Community perspectives on communicating about precision medicine in an Alaska native tribal health care system
RB Woodbury, JA Beans, KA Wark, P Spicer… - Frontiers in …, 2020 - frontiersin.org
Background: Precision medicine seeks to better tailor medical care to the needs of individual
patients, but there are challenges involved in communicating to patients, health care …
patients, but there are challenges involved in communicating to patients, health care …
[HTML][HTML] Power sharing, capacity building, and evolving roles in ELSI: The Center for the Ethics of indigenous genomic research
J Blanchard, V Hiratsuka, JA Beans… - … (Coral Gables, Fla.), 2020 - ncbi.nlm.nih.gov
Persistent, unresolved issues stemming from a legacy of scientific exploitation and bio-
colonialism have kept many tribal nations from participating in genomic research. The …
colonialism have kept many tribal nations from participating in genomic research. The …
[HTML][HTML] Use of Cognitive Interviews in the Development of a Survey Assessing American Indian and Alaska Native Adult Perspectives on Genetics and Biological …
VY Hiratsuka, JA Beans, C Byars, J Yracheta… - International Journal of …, 2024 - mdpi.com
The cognitive interview process is a method to validate a survey instrument's face validity
and enhance confidence in item interpretation, as well as a method to engage communities …
and enhance confidence in item interpretation, as well as a method to engage communities …