Generations of genomes: advances in paleogenomics technology and engagement for Indigenous people of the Americas

KS Tsosie, RL Begay, K Fox, G Nanibaa'A - Current opinion in genetics & …, 2020 - Elsevier
For decades, scientists have collected genomic information from Indigenous peoples and
their ancestors with the goal of elucidating human migration events, understanding ancestral …

A set of principles and practical suggestions for equitable fieldwork in biology

V Ramírez-Castañeda, EP Westeen… - Proceedings of the …, 2022 - National Acad Sciences
Field biology is an area of research that involves working directly with living organisms in
situ through a practice known as “fieldwork.” Conducting fieldwork often requires complex …

Health-related participatory research in American Indian and Alaska native communities: a scoping review

RB Woodbury, S Ketchum, VY Hiratsuka… - International journal of …, 2019 - mdpi.com
A scoping review was conducted to assess the state of the literature on health-related
participatory research involving American Indian and Alaska Native communities. Online …

Chasing ghosts: race, racism, and the future of microbiome research

TJ De Wolfe, MR Arefin, A Benezra… - Msystems, 2021 - Am Soc Microbiol
In this article, we argue that a careful examination of human microbiome science's
relationship with race and racism is necessary to foster equitable social and ecological …

Extending research protections to tribal communities

B Saunkeah, JA Beans, MT Peercy… - The American Journal …, 2021 - Taylor & Francis
The history of research in American Indian/Alaska Native (AI/AN) communities has been
marked by unethical practices, resulting in mistrust and reluctance to participate in research …

An Alaska Native community's views on genetic research, testing, and return of results: Results from a public deliberation

VY Hiratsuka, JA Beans, JW Blanchard, J Reedy… - PloS one, 2020 - journals.plos.org
As genetic testing technology advances, genetic testing will move into standard practice in
the primary care setting. Genetic research, testing, and return of results are complex topics …

Ethical considerations for genetic research in low-income countries: perceptions of informed consent, data sharing, and expectations in Nicaragua

IS Delgado, A Outterson, V Ramesh… - European Journal of …, 2023 - nature.com
Genetic research presents numerous ethical, legal, and social implications (ELSI),
particularly when the research involves collaborations between investigators in high and low …

Community perspectives on communicating about precision medicine in an Alaska native tribal health care system

RB Woodbury, JA Beans, KA Wark, P Spicer… - Frontiers in …, 2020 - frontiersin.org
Background: Precision medicine seeks to better tailor medical care to the needs of individual
patients, but there are challenges involved in communicating to patients, health care …

[HTML][HTML] Power sharing, capacity building, and evolving roles in ELSI: The Center for the Ethics of indigenous genomic research

J Blanchard, V Hiratsuka, JA Beans… - … (Coral Gables, Fla.), 2020 - ncbi.nlm.nih.gov
Persistent, unresolved issues stemming from a legacy of scientific exploitation and bio-
colonialism have kept many tribal nations from participating in genomic research. The …

[HTML][HTML] Use of Cognitive Interviews in the Development of a Survey Assessing American Indian and Alaska Native Adult Perspectives on Genetics and Biological …

VY Hiratsuka, JA Beans, C Byars, J Yracheta… - International Journal of …, 2024 - mdpi.com
The cognitive interview process is a method to validate a survey instrument's face validity
and enhance confidence in item interpretation, as well as a method to engage communities …