Background Children with medical complexity is an increasing population whose parents
and healthcare providers face multiple decisions. Shared decision-making is a process …

Objectives Respite for families of children and youth with special healthcare needs
(CYSHCN) is essential for sustaining a family care environment. Lacking is an …

Objective: to analyze the effect of parental mutuality on the quality of life related to the health
of mothers who care for children with special health needs. Method: an observational …

Objective: to analyze the relationship between families' living context and their management
skills in caring for children with chronic health conditions. Method: a mixed, convergent …

Objective To know the dehospitalization of technology-dependent children from a
multiprofessional perspective. Method A qualitative, exploratory and descriptive study …

Objetivo analisar os fatores associados ao apoio social às mães de crianças que
necessitam de cuidados contínuos e complexos. Método estudo observacional, analítico e …

Children with special needs often experience exclusion and marginalization, especially in
access to education. Many traditional schools are not ready to accept them due to the lack of …

Objective: to interpret the meanings attributed to the health-related quality of life by
caregivers of adolescents with type 1 diabetes mellitus. Methods: qualitative, descriptive …

Objetivo: analisar o efeito da mutualidade parental na qualidade de vida relacionada à
saúde das mães cuidadoras de crianças com necessidades especiais de saúde. Método …

Objective: To identify the manifestations presented by parents of children and adolescents
who require special health attention that can impact their mental health. Methods …