The complete European guidelines on phenylketonuria: diagnosis and treatment

AMJ Van Wegberg, A MacDonald, K Ahring… - Orphanet journal of rare …, 2017 - Springer
Phenylketonuria (PKU) is an autosomal recessive inborn error of phenylalanine metabolism
caused by deficiency in the enzyme phenylalanine hydroxylase that converts phenylalanine …

Review of adherence-related issues in adolescents and young adults with cancer

P Butow, S Palmer, A Pai, B Goodenough… - Journal of Clinical …, 2010 - ascopubs.org
Purpose This review aims to provide a broad overview of the issues and clinical challenges
of nonadherence in adolescents and young adults (AYAs) with cancer. Nonadherence can …

Meta-analysis of psychological interventions to promote adherence to treatment in pediatric chronic health conditions

S Kahana, D Drotar, T Frazier - Journal of pediatric psychology, 2008 - academic.oup.com
Objective To estimate the effectiveness of adherence-promoting psychological interventions
for pediatric populations with chronic health conditions. Methods A meta-analysis was …

Nutritional management of phenylketonuria

EL MacLeod, DM Ney - Annales Nestlé (English ed.), 2010 - karger.com
Phenylketonuria (PKU) is caused by deficient activity of the enzyme phenylalanine
hydroxylase, needed to convert the essential amino acid (AA) phenylalanine (phe) to …

The fun, food, and fitness project (FFFP)

T Baranowski, JC Baranowski, KW Cullen… - Ethnicity & disease, 2003 - JSTOR
Objective: The Girls health Enrichment Multisite Studies (GEMS) Fun, Food, and Fitness
Project (FFFP) was designed to prevent obesity among 8-year-old African-American girls …

Adherence to pediatric treatment regimens.

AML Greca, ER Mackey - 2009 - psycnet.apa.org
The present chapter provides an overview of pediatric adherence and is divided into three
major sections. The first focuses on issues of definition and measurement; the second …

[HTML][HTML] Factors Affecting Adherence to a Low Phenylalanine Diet in Patients with Phenylketonuria: A Systematic Review

R Yagudina, A Kulikov, V Serpik, M Protsenko… - Nutrients, 2024 - mdpi.com
Phenylketonuria (PKU) is an inherited metabolic disorder that requires lifelong adherence to
a low-phenylalanine (Phe) diet to prevent severe neurological complications. However …

Health-related quality of life improves in children and adolescents with inflammatory bowel disease after attending a camp sponsored by the Crohn's and Colitis …

MA Shepanski, LB Hurd, K Culton… - Inflammatory bowel …, 2005 - academic.oup.com
Purpose To describe the reported health-related quality of life (HRQOL) in children and
adolescents with inflammatory bowel disease (IBD) after attending an IBD summer camp …

Camp experiences in the lives of adolescents with serious illnesses

A Gillard, J Allsop - Children and Youth Services Review, 2016 - Elsevier
This study explored the experiences of a summer camp for adolescents with serious
illnesses and included interview responses from campers with different types of serious …

Behavioral predictors of medication adherence trajectories among youth with newly diagnosed epilepsy

K Loiselle, JR Rausch, AC Modi - Epilepsy & Behavior, 2015 - Elsevier
Objective This study aimed to identify psychosocial predictors of two-year antiepileptic drug
(AED) adherence trajectories among youth with newly diagnosed epilepsy, controlling for …