Palliation, end of life care and ventilation withdrawal in neuromuscular disorders

J Elverson, H Evans… - Chronic respiratory …, 2023 - journals.sagepub.com
Background/objectives The role of palliative care in the support of patients with
neuromuscular disorders (NMDs) is generally recognised in spite of the scarcity of condition …

The neuropalliative multidisciplinary team—Members and their roles

F Brennan, MD Gardiner, M Narasimhan - Handbook of Clinical Neurology, 2022 - Elsevier
Neurodegenerative conditions are prominent contributors to both morbidity and mortality
worldwide. They pose a significant challenge to health professionals, health systems, and …

Inclusive gaming through AI: a perspective for identifying opportunities and obstacles through co-design with people living with MND

N Dwyer, M Harrison, B O'Mara… - Frontiers in Computer …, 2024 - frontiersin.org
This interdisciplinary research initiative seeks to enhance the accessibility of video gaming
for individuals living with Motor Neurone Disease (MND), a condition characterized by …

D-Glutamate Production by Stressed Escherichia Coli Provides a Clue for the Induction Mechanism of the ALS Disease

EBI Monselise, M Vyazmensky, T Scherf… - 2024 - researchsquare.com
In the search for the origin of Amyotrophic Lateral Sclerosis disease (ALS (, we hypothesized
earlier (Monselise, 2019) that D-amino acids produced by stressed microbiome may serve …

D-Amino Acids are Signaling Agents Under Stress, that Broadly Impact Preventive Medicine

EBI Monselise - 2019 - preprints.org
Three different fields intersect in search of an understanding of the point-of-origin of modern-
age diseases: 1) D-amino acids and their role under stress conditions; 2) evolutionary origin …

[PDF][PDF] Journal of Family Medicine and Disease Prevention

RG Beran - Journal of, 2022 - scholar.archive.org
Neurological localisation is dependent on history and physical examination and demands
that the clinician is aware of those features, encompassed within the clinical setting, that …

[PDF][PDF] “That could have been me”: An Interpretative Phenomenological Analysis of Healthcare Professionals Experience of Managing the Professional and Personal …

N Slay - Research Portfolio Submitted in Part Fulfilment of, 2022 - researchportal.bath.ac.uk
Motor Neurone Disease (MND) is an umbrella term given to a group of progressive and, as
yet, incurable neurodegenerative diseases affecting 4.5 in 100,000 individuals globally …

FACTORS AFFECTING THE LENGTH OF STAY IN AMYOTROPHIC LATERAL SCLEROSIS IN PALLIATIVE CARE Palyatif Bakımda Amyotrofik Lateral Skleroz'da …

G Sarıçam - Bozok Tıp Dergisi, 2021 - dergipark.org.tr
ABSTRACTObjective: Amyotrophic lateral sclerosis (ALS) is a progressive
neurodegenerative disease that progresses with the degeneration of upper and lower motor …

Updates from the fray: rational off-label and over-the-counter prescribing in amyotrophic lateral sclerosis

W Pridmore - RRNMF Neuromuscular Journal, 2021 - journals.ku.edu
Background: Amyotrophic lateral sclerosis (ALS) is a terminal condition, which is increasing
in incidence. Therapeutic interventions have enjoyed limited success. However, research is …

[HTML][HTML] Factors Affecting The Length Of Stay In Amyotrophic Lateral Sclerosis In Palliative Care

G Sarıçam - Bozok Tıp Dergisi - dergipark.org.tr
Aim: Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that
progresses with the degeneration of upper and lower motor neurons. In our study, we aimed …