Changing epidemiology of congenital heart disease: effect on outcomes and quality of care in adults
A Liu, GP Diller, P Moons, CJ Daniels… - Nature Reviews …, 2023 - nature.com
The epidemiology of congenital heart disease (CHD) has changed in the past 50 years as a
result of an increase in the prevalence and survival rate of CHD. In particular, mortality in …
result of an increase in the prevalence and survival rate of CHD. In particular, mortality in …
Diagnosis and management of noncardiac complications in adults with congenital heart disease: a scientific statement from the American Heart Association
GK Lui, A Saidi, AB Bhatt, LJ Burchill, JF Deen… - Circulation, 2017 - Am Heart Assoc
Life expectancy and quality of life for those born with congenital heart disease (CHD) have
greatly improved over the past 3 decades. While representing a great advance for these …
greatly improved over the past 3 decades. While representing a great advance for these …
New York Heart Association (NYHA) classification in adults with congenital heart disease: relation to objective measures of exercise and outcome
C Bredy, M Ministeri, A Kempny… - … Journal-Quality of …, 2018 - academic.oup.com
Abstract Aims The New York Heart Association functional classification (NYHA class) is often
used to describe the functional capacity of adults with congenital heart disease (ACHD) …
used to describe the functional capacity of adults with congenital heart disease (ACHD) …
Illness identity in adults with a chronic illness
L Oris, K Luyckx, J Rassart, L Goubert… - Journal of clinical …, 2018 - Springer
The present study examines the concept of illness identity, the degree to which a chronic
illness is integrated into one's identity, in adults with a chronic illness by validating a new self …
illness is integrated into one's identity, in adults with a chronic illness by validating a new self …
Research Electronic Data Capture (REDCap): tackling data collection, management, storage, and privacy challenges
L Van Bulck, M Wampers… - European journal of …, 2022 - academic.oup.com
Data are the basis of research; without data, there is no research. However, growing
internationalization of research, increased complexity of study designs, and stricter …
internationalization of research, increased complexity of study designs, and stricter …
[HTML][HTML] Physical functioning, mental health, and quality of life in different congenital heart defects: comparative analysis in 3538 patients from 15 countries
P Moons, K Luyckx, C Thomet, W Budts… - Canadian Journal of …, 2021 - Elsevier
Background We compared physical functioning, mental health, and quality of life (QoL) of
patients with different subtypes of congenital heart disease (CHD) in a large international …
patients with different subtypes of congenital heart disease (CHD) in a large international …
Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS
P Moons, K Luyckx, C Thomet, W Budts… - European journal of …, 2023 - academic.oup.com
The congenital heart disease (CHD) population now comprises an increasing number of
older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient …
older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient …
Quality of life in adult patients with congenital heart disease: Results of a double-center study
Z Khajali, A Sayyadi, Z Ansari, M Aliramezany - Frontiers in psychiatry, 2023 - frontiersin.org
Introduction Prevalence of congenital heart disease (CHD) has increased in recent years,
and patients with CHD have to deal with sequelae of the multiple medical and surgical …
and patients with CHD have to deal with sequelae of the multiple medical and surgical …
Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors
P Moons, AH Kovacs, K Luyckx, C Thomet… - International journal of …, 2018 - Elsevier
Aims Geographical differences in patient-reported outcomes (PROs) of adults with
congenital heart disease (ConHD) have been observed, but are poorly understood. We …
congenital heart disease (ConHD) have been observed, but are poorly understood. We …
[HTML][HTML] Management of people with a Fontan circulation: a Cardiac Society of Australia and New Zealand position statement
The Fontan circulation describes the circulatory state resulting from an operation in
congenital heart disease where systemic venous return is directed to the lungs without an …
congenital heart disease where systemic venous return is directed to the lungs without an …