Background End‐stage kidney disease (ESKD) is a chronic, debilitative and progressive
illness that may need interventions such as dialysis, transplantation, dietary and fluid …

How does caregiving affect health and well-being and what resources help caregivers? This
book provides a synthesis of psychological research on caregiver stress and brings attention …

Background Careful patient–clinician shared decision-making about dialysis initiation has
been promoted, but few studies have addressed patient perspectives on the extent of …

Objective To evaluate the feasibility and efficacy of a serious illness decision aid (Plan Well
Guide) in increasing the engagement of substitute decision-makers (SDM) in advance care …

Background: Ethical concerns were identified as a potential barrier to advancing palliative
and end-of-life science at the 2004 National Institutes of Health State of the Science …

When patients lack sufficient treatment options for serious medical conditions, they rely on
the prompt approval and development of new therapeutic alternatives, such as medical …

Background Recruitment is the most common failure point for clinical studies, with
recruitment failure adversely affecting science, dollar costs, human capital, and the ethical …

Background: Qualitative pain research for hospice patients with cancer and their caregivers
involves recruiting and retaining participants with multiple vulnerabilities and ethical and …

Background The reliability of results can be compromised when subsets of participants who
remain on a study differ from those who drop out. Although recent studies have investigated …

Background: The reliability of results can be compromised when subsets of participants who
remain on a study differ from those who drop out. Although recent studies have investigated …