Over the past decade, new research has advanced scientific knowledge of
neurodevelopmental trajectories, factors that increase neurodevelopmental risk, and …

Background: Integrating family-centered care (FCC) and developmental care (DC) principles
in neonatal care settings may improve neurodevelopmental outcomes for high-risk …

Background Motor development delay is the first neurodevelopmental impairment that
becomes apparent in infants with congenital heart disease (CHD). Early interventions have …

Background Infants with single ventricle congenital heart disease undergo 3 staged
surgeries/interventions, with risk for morbidity and mortality. We estimated the effect of …

Introduction Infants with congenital heart disease (CHD) are at high risk for developmental
differences which can be explained by the cumulative effect of medical complications along …

Due to improvements in recognition and management of their multisystem disease, the long‐
term survival of infants, children, and adolescents with trisomy 21 and congenital heart …

Neurodevelopmental disabilities affect up to 50% of survivors of congenital heart disease
(CHD). Language difficulties are frequently identified during preschool period and can lead …

Background Parents of newborns with congenital heart disease (CHD) are at risk for anxiety,
depression, and post-traumatic stress. Few studies have examined whether modifiable …

Objective To provide an overview of the development of the Preparing Heart and
Mind™(PHM™) care program designed for parents with a prenatal diagnosis of critical …

Background Family‐centred care (FCC), while a core value of paediatric hospitals, has not
been well‐studied in the paediatric cardiac intensive care unit (PCICU). Aims To describe …