The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?

J Russell, N Fudge, T Greenhalgh - Research involvement and …, 2020 - Springer
As public involvement in the design, conduct and dissemination of health research has
become an expected norm and firmly enshrined in policy, interest in measuring its impact …

Exploring the impact of engagement in mental health and substance use research: a scoping review and thematic analysis

NY Sheikhan, K Kuluski, S McKee, M Hiebert… - Health …, 2023 - Wiley Online Library
Background There is growing evidence demonstrating the impact of engaging people with
lived experience (PWLE) in health research. However, it remains unclear what evidence is …

Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review

L Cobbaert, AR Millichamp, R Elwyn… - Journal of Eating …, 2024 - Springer
Autistic people and those with attention deficit hyperactivity disorder are at a high risk of
developing an eating disorder. While there is limited evidence on the relationship between …

“I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project

E Pellicano, W Lawson, G Hall, J Mahony… - Autism in …, 2022 - liebertpub.com
Introduction: Autistic advocates and their supporters have long argued that conventional
research practices provide too few opportunities for genuine engagement with autistic …

Persons or data points? Ethics, artificial intelligence, and the participatory turn in mental health research.

JA Skorburg, K O'Doherty, P Friesen - American Psychologist, 2024 - psycnet.apa.org
This article identifies and examines a tension in mental health researchers' growing
enthusiasm for the use of computational tools powered by advances in artificial intelligence …

A feeling for the algorithm: Diversity, expertise, and artificial intelligence

C Stinson, S Vlaad - Big Data & Society, 2024 - journals.sagepub.com
Diversity is often announced as a solution to ethical problems in artificial intelligence (AI),
but what exactly is meant by diversity and how it can solve those problems is seldom spelled …

Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review

LD Hawke, NY Sheikhan, S Roberts… - Research Involvement and …, 2023 - Springer
Background There is growing recognition that engaging people with lived experience
(PWLE) in mental health and substance use research improves the quality of the research in …

Best-practices for co-design processes involving people with severe mental illness for eMental health interventions: a qualitative multi-method approach

SE Schouten, H Kip, T Dekkers, J Deenik… - Design for …, 2022 - Taylor & Francis
The lack of adoption of eMental Health technologies by people with severe mental illness
(SMI) might be explained by a mismatch between technology design and users' skills …

A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil

FR Siston, SG Murta, JA de Alcântara Mendes… - BMJ Global …, 2023 - gh.bmj.com
Introduction Coproduction of mental health research and interventions involving researchers
and young people is increasingly common. However, this model raises challenges, related …

A philosophical exploration of experience-based expertise in mental health care

R Dings, Ş Tekin - Philosophical Psychology, 2023 - Taylor & Francis
The idea that (former) patients are experts who could contribute to mental health care
practices is gaining traction. Experts-by-Experience are increasingly employed by …