The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?
J Russell, N Fudge, T Greenhalgh - Research involvement and …, 2020 - Springer
As public involvement in the design, conduct and dissemination of health research has
become an expected norm and firmly enshrined in policy, interest in measuring its impact …
become an expected norm and firmly enshrined in policy, interest in measuring its impact …
Exploring the impact of engagement in mental health and substance use research: a scoping review and thematic analysis
NY Sheikhan, K Kuluski, S McKee, M Hiebert… - Health …, 2023 - Wiley Online Library
Background There is growing evidence demonstrating the impact of engaging people with
lived experience (PWLE) in health research. However, it remains unclear what evidence is …
lived experience (PWLE) in health research. However, it remains unclear what evidence is …
Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review
L Cobbaert, AR Millichamp, R Elwyn… - Journal of Eating …, 2024 - Springer
Autistic people and those with attention deficit hyperactivity disorder are at a high risk of
developing an eating disorder. While there is limited evidence on the relationship between …
developing an eating disorder. While there is limited evidence on the relationship between …
“I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project
E Pellicano, W Lawson, G Hall, J Mahony… - Autism in …, 2022 - liebertpub.com
Introduction: Autistic advocates and their supporters have long argued that conventional
research practices provide too few opportunities for genuine engagement with autistic …
research practices provide too few opportunities for genuine engagement with autistic …
Persons or data points? Ethics, artificial intelligence, and the participatory turn in mental health research.
This article identifies and examines a tension in mental health researchers' growing
enthusiasm for the use of computational tools powered by advances in artificial intelligence …
enthusiasm for the use of computational tools powered by advances in artificial intelligence …
A feeling for the algorithm: Diversity, expertise, and artificial intelligence
Diversity is often announced as a solution to ethical problems in artificial intelligence (AI),
but what exactly is meant by diversity and how it can solve those problems is seldom spelled …
but what exactly is meant by diversity and how it can solve those problems is seldom spelled …
Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review
LD Hawke, NY Sheikhan, S Roberts… - Research Involvement and …, 2023 - Springer
Background There is growing recognition that engaging people with lived experience
(PWLE) in mental health and substance use research improves the quality of the research in …
(PWLE) in mental health and substance use research improves the quality of the research in …
Best-practices for co-design processes involving people with severe mental illness for eMental health interventions: a qualitative multi-method approach
The lack of adoption of eMental Health technologies by people with severe mental illness
(SMI) might be explained by a mismatch between technology design and users' skills …
(SMI) might be explained by a mismatch between technology design and users' skills …
A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
FR Siston, SG Murta, JA de Alcântara Mendes… - BMJ Global …, 2023 - gh.bmj.com
Introduction Coproduction of mental health research and interventions involving researchers
and young people is increasingly common. However, this model raises challenges, related …
and young people is increasingly common. However, this model raises challenges, related …
A philosophical exploration of experience-based expertise in mental health care
The idea that (former) patients are experts who could contribute to mental health care
practices is gaining traction. Experts-by-Experience are increasingly employed by …
practices is gaining traction. Experts-by-Experience are increasingly employed by …