The ethics of community-based research with people who use drugs: results of a scoping review

R Souleymanov, D Kuzmanović, Z Marshall… - BMC medical …, 2016 - Springer
Background Drug user networks and community-based organizations advocate for greater,
meaningful involvement of people with lived experience of drug use in research, programs …

Co-research with older people: perspectives on impact

R Littlechild, D Tanner, K Hall - Qualitative Social Work, 2015 - journals.sagepub.com
Although research in partnership with older people has been slower to develop than that
with some other service user 'groups', there are a growing number of health and social care …

Public involvement in health and social sciences research: a concept analysis

M Hughes, C Duffy - Health Expectations, 2018 - Wiley Online Library
Background Research funding bodies have significantly increased emphasis on the need
for public involvement in research with the requirement to evidence effective methods and …

Lived experience as the basis of collaborative knowing. Inclusivity and resistance to stigma in co-research

M Kulmala, S Venäläinen, O Hietala… - International …, 2024 - journals.sagepub.com
Social scientific research has become increasingly aware of power asymmetries and the
elitist and exclusive nature of scientific knowledge production. These debates have resulted …

The paradoxes of recovery policy: Exploring the impact of austerity and responsibilisation for the citizenship claims of people with drug problems

A Roy, J Buchanan - Social Policy & Administration, 2016 - Wiley Online Library
This article critically examines the implications accompanying the introduction and
implementation of recovery‐based policy. The article draws upon research conducted in L …

Journey of ethics–conducting collaborative research with people with dementia

DS Thoft, A Ward, J Youell - Dementia, 2021 - journals.sagepub.com
This paper explores some of the ethical considerations of working collaboratively with
people with dementia within research based upon the experiences, challenges and learning …

Managing expectations in participatory research involving older people: what's in it for whom?

E Mey, B van Hoven - International Journal of Social Research …, 2019 - Taylor & Francis
Participatory research actively engages participants in some or all stages of the research
process–from deciding on scope and problem statement to actively collecting data to …

The Balanced Participation Model: Sharing opportunities for giving people with early-stage dementia a voice in research

DS Thoft, M Pyer, A Horsbøl, J Parkes - Dementia, 2020 - journals.sagepub.com
Much has been written about the stigmatisation and discrimination ascribed to people with
dementia in society and in research. This marginalisation has led to a silencing of their …

A critical discussion of the use of film in participatory research projects with homeless young people: an analysis based on case examples from England and Canada

A Roy, J Kennelly, H Rowley… - Qualitative Research, 2021 - journals.sagepub.com
The focus of this paper is on the complex and sometimes contradictory effects of generating
films with and about young people who have experienced homelessness, through …

Doing youth participatory action research (YPAR) with Bourdieu: An invitation to reflexive (participatory) sociology

J Kennelly, C Larkins, A Roy - The Sociological Review, 2024 - journals.sagepub.com
Recent years have seen an increased epistemological and methodological interest within
sociology in participatory research. Seen as one mode by which to upturn the apparent …