Integrating genomics into the care of people with palliative needs: A global scoping review of policy recommendations

S White, G McErlean, C Virdun, JL Phillips… - Public Health …, 2023 - karger.com
Background: Genomics has growing relevance to palliative care, where testing largely
benefits relatives. Integrating genomics into palliative care has not received the critical …

A survey of genetic and palliative care health professionals' views of integrating genetics into palliative care

S White, E Turbitt, K Rogers, K Tucker… - European Journal of …, 2024 - nature.com
Genetic counselling and testing have utility for people with palliative care needs and their
families. However, genetic and palliative care health professionals have described …

Approaching discussions about genetics with palliative patients and their families: a qualitative exploration with genetic health professionals

S White, E Turbitt, JL Phillips, C Jacobs - European Journal of Human …, 2023 - nature.com
Genetic information can provide clinical benefits to families of palliative patients. However,
integration of genetics into mainstream medicine has not focused on palliative populations …

Palliative care and genetics: personalized medicine for the patient and family

JN Bodurtha, TJ Smith - European Journal of Human Genetics, 2024 - nature.com
In an ideal world, palliative care specialists would encounter cancer and other patients with
all their germline genetic testing done and all their families' questions answered …

What do cancer patients' relatives think about addressing cancer family history and performing genetic testing in palliative care?

JE Cléophat, A Marin, S Pelletier, Y Joly… - European Journal of …, 2020 - nature.com
Palliative care may be an opportunity to discuss cancer family history and familial cancer
risks with patients' relatives. It may also represent the last opportunity to collect, from dying …

Genomic Information for Families of the Terminally ill (GIFT) Project: Building Evidence for An Intervention Using Mixed Methods

S White - 2023 - search.proquest.com
As genomic testing moves into routine healthcare, including palliative care, understanding
the needs of health professionals will maximise the benefits of genomics while minimising …

Genetics in palliative care: too much to ask?

C Jacobs, S White, J Phillips - International journal of …, 2019 - magonlinelibrary.com
People with an inherited condition who receive palliative care may be missing out on the
opportunity to store a DNA sample for future use by their families and offspring. A DNA …

Inclusion of a Three-Generation Pedigree in Primary Care: A Quality Improvement Project

B Fogelson-Rosenthal - 2021 - search.proquest.com
Problem: Cancer is one of the leading causes of death worldwide, accounting for an
estimated 19.3 million new cancer cases and nearly 10 million deaths in 2020. That same …

[PDF][PDF] CHAPITRE 6: What characterizes cancer family history collection tools? A critical literature review

JE Cléophat, H Nabi, S Pelletier… - … familiaux de cancer …, 2020 - dam-oclc.bac-lac.gc.ca
Background: Many tools have been developed for the standardized collection of cancer
family history (FH). However, it remains unclear which tools have the potential to help health …

[PDF][PDF] CHAPITRE 5: What do cancer patients' relatives think about addressing cancer family history and performing genetic testing in palliative care?

JE Cléophat, A Marin, S Pelletier… - … familiaux de cancer …, 2020 - dam-oclc.bac-lac.gc.ca
Palliative care may be an opportunity to discuss cancer family history and familial cancer
risks with patients' relatives. It may also represent the last opportunity to collect, from dying …