Palliative care across the life span for children with heart disease: a scientific statement from the American Heart Association
ED Blume, R Kirsch, MK Cousino… - … Quality and Outcomes, 2023 - Am Heart Assoc
Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …
of primary and subspecialty palliative care in pediatric congenital and acquired heart …
Goals of care among parents of children receiving palliative care
C Feudtner, LJ Beight, JY Boyden, DL Hill… - JAMA …, 2023 - jamanetwork.com
Importance While knowing the goals of care (GOCs) for children receiving pediatric palliative
care (PPC) are crucial for guiding the care they receive, how parents prioritize these goals …
care (PPC) are crucial for guiding the care they receive, how parents prioritize these goals …
Surgical intervention in patients receiving pediatric palliative care services
Video Abstract BACKGROUND AND OBJECTIVES Many patients receiving pediatric
palliative care (PPC) present with surgically treatable problems. The role of surgery in the …
palliative care (PPC) present with surgically treatable problems. The role of surgery in the …
State-to-state variation in rates and causes of child and adolescent mortality in the US
EW Vargas, P Stallworth, PM Carter… - JAMA pediatrics, 2024 - jamanetwork.com
Methods| In this cross-sectional study, we analyzed mortality data (2018-2022) from the
Centers for Disease Control and Prevention's Wide-Ranging Outline Data for Epidemiologic …
Centers for Disease Control and Prevention's Wide-Ranging Outline Data for Epidemiologic …
Parent priorities in end-of-life care for children with cancer
P Ananth, M Lindsay, S Mun, S McCollum… - JAMA network …, 2023 - jamanetwork.com
Importance Robust quality measures to benchmark end-of-life care for children with cancer
do not currently exist; 28 candidate patient-centered quality measures were previously …
do not currently exist; 28 candidate patient-centered quality measures were previously …
Palliative Care in the Pediatric Intensive Care Unit
N Crain, J Miller - AACN Advanced Critical Care, 2024 - AACN
The purposes of this review are to describe differences between palliative care for adult
patients and palliative care for pediatric patients, both generally and in the intensive care …
patients and palliative care for pediatric patients, both generally and in the intensive care …
The pediatric palliative care quality network: palliative care consultation and patient outcomes
BACKGROUND AND OBJECTIVES Quality benchmarking in pediatric palliative care (PPC)
helps identify gaps in care and guides quality improvement. Our study objective was to …
helps identify gaps in care and guides quality improvement. Our study objective was to …
Trends in Location of Death for Individuals With Pediatric Cancer
Methods| The study was exempt from Memorial Sloan Kettering institutional review board
oversight because it was non–human participant research. Informed consent was not …
oversight because it was non–human participant research. Informed consent was not …
[HTML][HTML] Prevalencia de dolor y su abordaje terapéutico en niños pasibles de cuidados paliativos asistidos en un centro de referencia de Uruguay
M Notejane, F Galarraga, M Baggio… - Archivos de Pediatría …, 2023 - scielo.edu.uy
Introducción: el tratamiento del dolor es un derecho humano y constituye un pilar de los
cuidados paliativos (CP). Este síntoma en niños suele ser subestimado e insuficientemente …
cuidados paliativos (CP). Este síntoma en niños suele ser subestimado e insuficientemente …
[HTML][HTML] Using the pediatric patient-reported outcomes–common terminology criteria for adverse events to longitudinally measure symptom adverse events of children …
KE Montgomery, JL Raybin, J Ward… - Cancer Care …, 2022 - journals.lww.com
Background: Children with advanced cancer are frequently enrolled on clinical trials and
experience multiple symptoms. Inclusion of patient-reported outcomes in pediatric cancer …
experience multiple symptoms. Inclusion of patient-reported outcomes in pediatric cancer …