Palliative care across the life span for children with heart disease: a scientific statement from the American Heart Association

ED Blume, R Kirsch, MK Cousino… - … Quality and Outcomes, 2023 - Am Heart Assoc
Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …

Goals of care among parents of children receiving palliative care

C Feudtner, LJ Beight, JY Boyden, DL Hill… - JAMA …, 2023 - jamanetwork.com
Importance While knowing the goals of care (GOCs) for children receiving pediatric palliative
care (PPC) are crucial for guiding the care they receive, how parents prioritize these goals …

Surgical intervention in patients receiving pediatric palliative care services

DI Ellis, RT Nye, J Wolfe, C Feudtner - Pediatrics, 2023 - publications.aap.org
Video Abstract BACKGROUND AND OBJECTIVES Many patients receiving pediatric
palliative care (PPC) present with surgically treatable problems. The role of surgery in the …

State-to-state variation in rates and causes of child and adolescent mortality in the US

EW Vargas, P Stallworth, PM Carter… - JAMA pediatrics, 2024 - jamanetwork.com
Methods| In this cross-sectional study, we analyzed mortality data (2018-2022) from the
Centers for Disease Control and Prevention's Wide-Ranging Outline Data for Epidemiologic …

Parent priorities in end-of-life care for children with cancer

P Ananth, M Lindsay, S Mun, S McCollum… - JAMA network …, 2023 - jamanetwork.com
Importance Robust quality measures to benchmark end-of-life care for children with cancer
do not currently exist; 28 candidate patient-centered quality measures were previously …

Palliative Care in the Pediatric Intensive Care Unit

N Crain, J Miller - AACN Advanced Critical Care, 2024 - AACN
The purposes of this review are to describe differences between palliative care for adult
patients and palliative care for pediatric patients, both generally and in the intensive care …

The pediatric palliative care quality network: palliative care consultation and patient outcomes

AC Postier, MC Root, DL O'Riordan… - Hospital …, 2024 - publications.aap.org
BACKGROUND AND OBJECTIVES Quality benchmarking in pediatric palliative care (PPC)
helps identify gaps in care and guides quality improvement. Our study objective was to …

Trends in Location of Death for Individuals With Pediatric Cancer

U Jain, AT Mathew, B Jain, EJG Feliciano… - JAMA …, 2024 - jamanetwork.com
Methods| The study was exempt from Memorial Sloan Kettering institutional review board
oversight because it was non–human participant research. Informed consent was not …

[HTML][HTML] Prevalencia de dolor y su abordaje terapéutico en niños pasibles de cuidados paliativos asistidos en un centro de referencia de Uruguay

M Notejane, F Galarraga, M Baggio… - Archivos de Pediatría …, 2023 - scielo.edu.uy
Introducción: el tratamiento del dolor es un derecho humano y constituye un pilar de los
cuidados paliativos (CP). Este síntoma en niños suele ser subestimado e insuficientemente …

[HTML][HTML] Using the pediatric patient-reported outcomes–common terminology criteria for adverse events to longitudinally measure symptom adverse events of children …

KE Montgomery, JL Raybin, J Ward… - Cancer Care …, 2022 - journals.lww.com
Background: Children with advanced cancer are frequently enrolled on clinical trials and
experience multiple symptoms. Inclusion of patient-reported outcomes in pediatric cancer …