Background Parent/consumer–reported data is valuable and necessary for population-
based assessment of many key child health and health care quality measures relevant to …

Children with special health care needs are believed to be susceptible to inequities in health
and health care access. Within the group with special needs, there is a smaller group of …

Transition to adult services for children and youth with special health care needs (CYSHCN)
has emerged as an important event in the life course of individuals with disabilities. Issues …

OBJECTIVE: Socioeconomic status (SES) is inversely related to pediatric mortality in the
community. However, it is unknown if this association exists for in-hospital pediatric mortality …

Objetivo: compreender a vivência de mães de crianças dependentes de tecnologia em
relação ao cuidado medicamentoso. Método: pesquisa qualitativa do tipo descritivo …

Abstract The Maternal and Child Health Bureau recently revised its measure of family-
provider shared decision-making (SDM) to better align with parents' views and the intent of …

Objective To identify possible subgroups of health care utilization (HCU) patterns among
adolescents and young adults (AYAs) with a chronic medical condition (CMC), and examine …

The purpose of this study was to identify geographic differences in health indicators for
children with special health care needs (CSHCN). It was hypothesized that geographic …

Objetivo: compreender a vivência de mães de crianças dependentes de tecnologia em
relação ao cuidado medicamentoso. Método: pesquisa qualitativa do tipo descritivo …

Objective: To identify the factors associated with family risk of children with special health
care needs. Methods: Bicentric study, with a cross-sectional design and a quantitative …