The road to hell is paved with good intentions: the experience of applying for national data for linkage and suggestions for improvement
Background We can improve healthcare services by better understanding current provision.
One way to understand this is by linking data sets from clinical and national audits, national …
One way to understand this is by linking data sets from clinical and national audits, national …
Chapter 4 demography of the UK Paediatric renal replacement therapy population in 2016
L Plumb, E Wong, A Casula, F Braddon, M Lewis… - Nephron, 2018 - karger.com
UK Renal Registry 20th Annual Report: Chapter 4 Demography of the UK Paediatric Renal
Replacement Therapy Population in 2016 Page 1 UK Renal Registry 20th Annual Report …
Replacement Therapy Population in 2016 Page 1 UK Renal Registry 20th Annual Report …
The spectrum of co-existing disease in children with established kidney failure using registry and linked electronic health record data
L Plumb, R Steenkamp, AJ Hamilton, H Maxwell… - Pediatric …, 2024 - Springer
Background Children with established kidney failure may have additional medical
conditions influencing kidney care and outcomes. This cross-sectional study aimed to …
conditions influencing kidney care and outcomes. This cross-sectional study aimed to …
[HTML][HTML] The Potential for Information Sharing Between an Electronic Medical Record System and the Moroccan Transplantation and Dialysis Registry: Examining …
B Bennis, G El Bardai, BA Chouhani, N Kabbali… - Cureus, 2024 - ncbi.nlm.nih.gov
Materials and methods The initial phase of this study involved a detailed review of existing
literature, highlighting the importance of registries, especially in nephrology. This part of the …
literature, highlighting the importance of registries, especially in nephrology. This part of the …
Advocacy for renal replacement therapy: the role of renal registries
C Couchoud, MB Gharbi - Clinical Kidney Journal, 2020 - academic.oup.com
The paper by Jardine et al. reporting results from the South African Renal Registry describes
a 2-fold success. First, even in a limited-resource environment, survival of patients on renal …
a 2-fold success. First, even in a limited-resource environment, survival of patients on renal …
[PDF][PDF] Investigating Kidney Disease Clinical Epidemiology Using Routinely Collected Administrative Data and Proteomics
RE Aylward - 2024 - research-information.bris.ac.uk
Data collected routinely during healthcare visits and additional biospecimens collected as
part of cohort study activities are invaluable to better understand kidney disease …
part of cohort study activities are invaluable to better understand kidney disease …
[PDF][PDF] Why Do Children with Chronic Kidney Disease Present Late to Specialist Services?
L Plumb - 2022 - research-information.bris.ac.uk
Abstract Chronic Kidney Disease (CKD) and progression to kidney failure in childhood has
significant implications for health and survival. If detected early, opportunities exist to slow …
significant implications for health and survival. If detected early, opportunities exist to slow …
Reporting inherited kidney diseases: pick up the gauntlet
M Antón-Gamero, M Melgosa-Hijosa - Clinical Kidney Journal, 2021 - academic.oup.com
On behalf of the Spanish Pediatric Non-End-Stage Chronic Kidney Disease Registry (REPIR
II), we completely agree with Torra et al.[1], who highlight the important role of national and …
II), we completely agree with Torra et al.[1], who highlight the important role of national and …
Data content of the TraumaRegister DGU®: Results of a random sample control
T Ziprian, F Laue, N Ramadanov, U Nienaber… - Der Unfallchirurg, 2018 - Springer
Background Registries are becoming increasingly more important in clinical research. The
TraumaRegister DGU® of the German Society for Trauma Surgery plays an excellent role …
TraumaRegister DGU® of the German Society for Trauma Surgery plays an excellent role …