Health-related quality of life and symptom reporting: similarities and differences between children and their parents
C Eiser, JW Varni - European journal of pediatrics, 2013 - Springer
Health-related quality of life (HRQOL) is increasingly seen as important to reflect the impact
of an illness and its treatment on a patient from the patient's perspective. However, there …
of an illness and its treatment on a patient from the patient's perspective. However, there …
Constraint‐induced movement therapy in children with unilateral cerebral palsy
BJ Hoare, MN Thorley, ML Jackman… - Cochrane database …, 2019 - cochranelibrary.com
Background Unilateral cerebral palsy (CP) is a condition that affects muscle control and
function on one side of the body. Children with unilateral CP experience difficulties using …
function on one side of the body. Children with unilateral CP experience difficulties using …
Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories …
Background Advances in biomedical science and technology have resulted in dramatic
improvements in the healthcare of pediatric chronic conditions. With enhanced survival …
improvements in the healthcare of pediatric chronic conditions. With enhanced survival …
Parent–child agreement across child health-related quality of life instruments: a review of the literature
P Upton, J Lawford, C Eiser - Quality of life research, 2008 - Springer
Aim To systematically review the literature published since 1999 on paediatric health-related
quality of life (HRQL) in relation to parent–child agreement. Methods Literature searches …
quality of life (HRQL) in relation to parent–child agreement. Methods Literature searches …
[HTML][HTML] Safety and efficacy of low-dose sirolimus in the PIK3CA-related overgrowth spectrum
VER Parker, KM Keppler-Noreuil, L Faivre, M Luu… - Genetics in …, 2019 - Elsevier
Purpose PIK3CA-related overgrowth spectrum (PROS) encompasses a range of debilitating
conditions defined by asymmetric overgrowth caused by mosaic activating PIK3CA variants …
conditions defined by asymmetric overgrowth caused by mosaic activating PIK3CA variants …
[图书][B] Treatment of cerebral palsy and motor delay
S Levitt, A Addison - 2018 - books.google.com
Treatment of Cerebral Palsy and Motor Delay is a highly practical, easy-to-read resource for
all paediatric practitioners and students working with the developmental abilities and …
all paediatric practitioners and students working with the developmental abilities and …
The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents
JW Varni, CA Limbers - Pediatric Clinics of North America, 2009 - Elsevier
Health-related quality of life (HRQOL) has been recognized as an important outcome, some
contend the most important outcome for children's health care interventions. The PedsQL …
contend the most important outcome for children's health care interventions. The PedsQL …
Cerebral palsy and aging
P Haak, M Lenski, MJC Hidecker… - … Medicine & Child …, 2009 - Wiley Online Library
Cerebral palsy (CP), the most common major disabling motor disorder of childhood, is
frequently thought of as a condition that affects only children. Deaths in children with CP …
frequently thought of as a condition that affects only children. Deaths in children with CP …
Quality of life of children and adolescents from São Paulo: reliability and validity of the Brazilian version of the Pediatric Quality of Life InventoryTM version 4.0 Generic …
Objectives: To evaluate the reliability and validity of the Brazilian version of the Pediatric
Quality of Life InventoryTM (PedsQLTM 4.0) Generic Core Scales and measure the quality of …
Quality of Life InventoryTM (PedsQLTM 4.0) Generic Core Scales and measure the quality of …
P-COSCA (pediatric core outcome set for cardiac arrest) in children: an advisory statement from the international liaison committee on resuscitation
Studies of pediatric cardiac arrest use inconsistent outcomes, including return of
spontaneous circulation and short-term survival, and basic assessments of functional and …
spontaneous circulation and short-term survival, and basic assessments of functional and …