Executive summary Every infant, child, and adolescent will experience pain at times
throughout their life. Childhood pain ranges from acute to chronic, and includes procedural …

Background Patient-reported outcome measures (PROMs) could play an important role in
identifying patients' needs and goals in clinical encounters, improving communication and …

Purpose Acute lymphoblastic leukemia (ALL) survivors are the largest group of childhood
cancer survivors; however, their risk for late effects is high. Cancer-related late effects have …

Studies have shown parents to report lower quality of life for their children with autism
spectrum disorder than children's self-report scores and the same applies for data on …

Aim: This study explored parent perspectives of participation patterns and environmental
supports and barriers for high-functioning children with autism spectrum disorder (ASD) …

Camouflaging is a strategy adopted by neurodivergent individuals to cope in neurotypical
social contexts, likely related to perceived stress. Despite increasing research in autistic …

Purpose This study examined health-related quality of life (HRQL) in children across
different physical illnesses; estimated parent–child agreement on HRQL reports; compared …

The present study examines to what extent two core characteristics of the quality of life (QoL)
construct were incorporated in the field of autism:(1) its subjective nature; and (2) its …

Background The diagnosis of depression in adolescents relies on identifying the presence
of specific core and additional symptoms. Symptoms can be identified using structured or …

Background Congenital heart disease (CHD) is the most common congenital anomaly at
birth, affecting approximately 1% of live births. In recent decades great medical and surgical …