Neurodevelopmental evaluation strategies for children with congenital heart disease aged birth through 5 years: recommendations from the cardiac …

J Ware, JL Butcher, B Latal, A Sadhwani… - Cardiology in the …, 2020 - cambridge.org
This paper provides specific guidelines for the neurodevelopmental evaluation of children
aged birth through 5 years with complex congenital heart disease. There is wide recognition …

Risk factors for tube feeding at discharge in infants undergoing neonatal surgery for congenital heart disease: a systematic review

KM Elgersma, AL Trebilcock, MO Whipple… - Pediatric …, 2023 - Springer
Abstract Approximately 30–50% of infants undergoing neonatal surgery for congenital heart
disease (CHD) cannot meet oral feeding goals by discharge and require feeding tube …

The impact of human milk on outcomes for infants with congenital heart disease: a systematic review

KM Elgersma, AC McKechnie, EN Schorr… - Breastfeeding …, 2022 - liebertpub.com
Background: Infants with congenital heart disease (CHD) are at risk for feeding-related
morbidity and mortality, with growth failure and oral feeding problems associated with poor …

[HTML][HTML] Parents' experiences of caring for their child at the time of discharge after cardiac surgery and during the postdischarge period: Qualitative study using an …

J Wray, K Brown, J Tregay, S Crowe, R Knowles… - Journal of medical …, 2018 - jmir.org
Background Congenital heart disease (CHD) is the most common class of birth defects,
which encompasses a broad spectrum of severity ranging from relatively minor to extremely …

Combining qualitative and quantitative operational research methods to inform quality improvement in pathways that span multiple settings

S Crowe, K Brown, J Tregay, J Wray… - BMJ quality & …, 2017 - qualitysafety.bmj.com
Background Improving integration and continuity of care across sectors within resource
constraints is a priority in many health systems. Qualitative operational research methods of …

Wayfinding through the “ocean of the great unknown”: how lactating parents establish a direct breastfeeding relationship with an infant with critical CHD

KM Elgersma, AC McKechnie… - Cardiology in the …, 2023 - cambridge.org
Introduction: Lactating parents of infants hospitalised for critical congenital heart disease
(CHD) face significant barriers to direct breastfeeding. While experiences of directly …

Feeding difficulties in neonates following cardiac surgery: determinants of prolonged feeding-tube use

EB McKean, NA Kasparian, S Batra… - Cardiology in the …, 2017 - cambridge.org
AimThe aims of this study were to examine the prevalence and potential correlates of
feeding difficulties in infants who underwent cardiac surgery in the neonatal period and to …

The development of a consensus-based nutritional pathway for infants with CHD before surgery using a modified Delphi process

LV Marino, MJ Johnson, NJ Hall, NJ Davies… - Cardiology in the …, 2018 - cambridge.org
IntroductionDespite improvements in the medical and surgical management of infants with
CHD, growth failure before surgery in many infants continues to be a significant concern. A …

Human milk feeding and direct breastfeeding improve outcomes for infants with single ventricle congenital heart disease: propensity score‐matched analysis of the …

KM Elgersma, J Wolfson, JA Fulkerson… - Journal of the …, 2023 - Am Heart Assoc
Background Infants with single ventricle congenital heart disease undergo 3 staged
surgeries/interventions, with risk for morbidity and mortality. We estimated the effect of …

Patterns of Breastfeeding and Human Milk Feeding in Infants with Single-Ventricle Congenital Heart Disease: A Population Study of the National Pediatric Cardiology …

KM Elgersma, DL Spatz, JA Fulkerson… - Breastfeeding …, 2023 - liebertpub.com
Introduction: Infants with single-ventricle (SV) congenital heart disease (CHD) undergo
staged surgical and/or catheter-based palliation and commonly experience feeding …