In 2018, the Neurodevelopmental and Psychosocial Interventions Working Group of the
Cardiac Neurodevelopmental Outcome Collaborative convened through support from an …

Over the past decade, new research has advanced scientific knowledge of
neurodevelopmental trajectories, factors that increase neurodevelopmental risk, and …

BACKGROUND: Data on anxiety, depression, and attention-deficit/hyperactivity disorder
(ADHD) are lacking for youth with congenital heart disease (CHD), particularly those with …

Children with congenital heart disease (CHD) may be at increased risk for
neurodevelopmental impairments. Long-term behavioral profiles and respective risk factors …

Background Individualized family-centered developmental care (IFDC) is considered the
standard of care for premature/medically fragile newborns and their families in intensive …

Aims Having a child with congenital heart disease (CHD) can affect parental health-related
quality of life (HR-QoL). We investigated the long-term trajectories of mental HRQoL (m …

Background: Parents of infants born with critical congenital heart disease are at risk for
adverse mental health symptoms. The purpose of this study was to identify infant-, parent …

Background Infants who undergo surgery for congenital heart disease are at risk of
neurodevelopmental delay. Cardiac surgery-associated acute kidney injury (CS-AKI) is …

Children with congenital heart disease (CHD) are at increased risk for neurodevelopmental
challenges across the lifespan. These are associated with neurological changes and …

Objective To assess the utility of an inpatient standardized developmental screener for early
identification of developmental risk in infants with a congenital heart defect (CHD). Study …