Objectives Individuals dependent on long-term mechanical ventilation (LTMV) for their day-
to-day living are a heterogenous population who go through several transitions over their …

Long-term noninvasive respiratory support, comprising continuous positive airway pressure
(CPAP) and noninvasive ventilation (NIV), in children is expanding worldwide, with …

Determining the timing for decannulation in children with a tracheostomy is a complex
process, as the appropriate timing varies based on the initial indication for the tracheostomy …

Objective Measure the prevalence of and factors associated with financial toxicity (FT) and
caregiver burden in families of tracheostomy-dependent children. FT is defined as the …

Background Caring for a child with a tracheostomy is challenging and requires parents to
master advanced medical skills, often without prior medical training. Tracheostomy …

The decisions around whether or not to provide tracheostomy and chronic mechanical
ventilation to children with acute neurologic injury are difficult for medical providers and …

Objectives Discharging a child home on long‐term ventilation (LTV) via tracheostomy is
complex and involves multiple healthcare providers across healthcare sectors. To date …

Neuromuscular disorders (NMDs) may be associated with a gradual loss of muscle function
over time, and children with these disorders are at risk of developing clinically significant …

Despite the rising prevalence of children with medical complexity who need extensive
medical care at home, the literature evaluating pediatric home healthcare has not been well …

Introduction Family caregivers play an important role supporting the day-to-day needs of
ventilator-assisted individuals (VAIs) living at home. Peer-to-peer communication can help …