Future planning among families of individuals with intellectual and developmental disabilities: A systematic review

C Lee, MM Burke - Journal of Policy and Practice in Intellectual …, 2020 - Wiley Online Library
Considering individuals with intellectual and developmental disabilities (IDD) are having
longer lives and outliving their parents, future planning has emerged as one of the most …

Caregiving roles of siblings of adults with intellectual and developmental disabilities: A systematic review

C Lee, MM Burke - Journal of Policy and Practice in Intellectual …, 2018 - Wiley Online Library
As individuals with intellectual and developmental disabilities (I/DD) grow older, many
siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However …

Sibling relationship quality and psychosocial outcomes among adult siblings of individuals with autism spectrum disorder and individuals with intellectual disability …

TS Tomeny, BM Ellis, JA Rankin, TD Barry - Research in developmental …, 2017 - Elsevier
Research on adult typically-developing (TD) siblings of individuals with developmental
disabilities remains limited, and outcomes for TD siblings appear to vary widely. For the …

“What's going to happen when we're gone?” Family caregiving capacity for older people with an intellectual disability in Ireland

D Brennan, R Murphy, P McCallion… - Journal of Applied …, 2018 - Wiley Online Library
Background Changing family sociodemographic factors, increased life expectancy for
people with an intellectual disability, deinstitutionalization and policy prioritization of the …

Growing older with autism–The experiences of adult siblings of individuals with autism

P Moss, V Eirinaki, S Savage, P Howlin - Research in Autism Spectrum …, 2019 - Elsevier
Background Most studies of siblings of individuals with autism have involved children or
adolescents. In the present study we explored the experiences of adults with a brother or …

“I worry about his future!” Challenges to future planning for adult children with ASD

CN Marsack-Topolewski, JM Graves - Journal of Family Social …, 2020 - Taylor & Francis
The aging process for parental caregivers of adult children with autism spectrum disorder
(ASD) can be complicated and filled with worry about the unknown. This qualitative …

Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities

A Meltzer, J Kramer - Disability & Society, 2016 - Taylor & Francis
Research about siblings where one has a disability has historically focused on the
psychological outcomes of siblings of people with disabilities and has very rarely asked …

Social consequences of family care of adults: a scoping review

N Keating, J Eales - International Journal of Care …, 2017 - bristoluniversitypressdigital.com
The power of social connections is a contemporary focus of research across world regions.
Yet, evidence of challenges to carers' social relationships remains fragmented and …

Exploring the perspectives of parents and siblings toward future planning for individuals with intellectual and developmental disabilities

CE Lee, MM Burke, CR Stelter - Intellectual and …, 2019 - meridian.allenpress.com
Parents often provide the bulk of caregiving supports for their adult offspring with intellectual
and developmental disabilities (IDD). Given the longer lives of people with IDD, however …

Siblings' and parents' perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study

K Kruithof, L IJzerman, A Nieuwenhuijse… - Journal of Intellectual …, 2021 - Taylor & Francis
Background Since the life expectancy of people with profound intellectual and multiple
disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents …