Future planning among families of individuals with intellectual and developmental disabilities: A systematic review
Considering individuals with intellectual and developmental disabilities (IDD) are having
longer lives and outliving their parents, future planning has emerged as one of the most …
longer lives and outliving their parents, future planning has emerged as one of the most …
Caregiving roles of siblings of adults with intellectual and developmental disabilities: A systematic review
As individuals with intellectual and developmental disabilities (I/DD) grow older, many
siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However …
siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However …
Sibling relationship quality and psychosocial outcomes among adult siblings of individuals with autism spectrum disorder and individuals with intellectual disability …
Research on adult typically-developing (TD) siblings of individuals with developmental
disabilities remains limited, and outcomes for TD siblings appear to vary widely. For the …
disabilities remains limited, and outcomes for TD siblings appear to vary widely. For the …
“What's going to happen when we're gone?” Family caregiving capacity for older people with an intellectual disability in Ireland
D Brennan, R Murphy, P McCallion… - Journal of Applied …, 2018 - Wiley Online Library
Background Changing family sociodemographic factors, increased life expectancy for
people with an intellectual disability, deinstitutionalization and policy prioritization of the …
people with an intellectual disability, deinstitutionalization and policy prioritization of the …
Growing older with autism–The experiences of adult siblings of individuals with autism
P Moss, V Eirinaki, S Savage, P Howlin - Research in Autism Spectrum …, 2019 - Elsevier
Background Most studies of siblings of individuals with autism have involved children or
adolescents. In the present study we explored the experiences of adults with a brother or …
adolescents. In the present study we explored the experiences of adults with a brother or …
“I worry about his future!” Challenges to future planning for adult children with ASD
CN Marsack-Topolewski, JM Graves - Journal of Family Social …, 2020 - Taylor & Francis
The aging process for parental caregivers of adult children with autism spectrum disorder
(ASD) can be complicated and filled with worry about the unknown. This qualitative …
(ASD) can be complicated and filled with worry about the unknown. This qualitative …
Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities
Research about siblings where one has a disability has historically focused on the
psychological outcomes of siblings of people with disabilities and has very rarely asked …
psychological outcomes of siblings of people with disabilities and has very rarely asked …
Social consequences of family care of adults: a scoping review
N Keating, J Eales - International Journal of Care …, 2017 - bristoluniversitypressdigital.com
The power of social connections is a contemporary focus of research across world regions.
Yet, evidence of challenges to carers' social relationships remains fragmented and …
Yet, evidence of challenges to carers' social relationships remains fragmented and …
Exploring the perspectives of parents and siblings toward future planning for individuals with intellectual and developmental disabilities
Parents often provide the bulk of caregiving supports for their adult offspring with intellectual
and developmental disabilities (IDD). Given the longer lives of people with IDD, however …
and developmental disabilities (IDD). Given the longer lives of people with IDD, however …
Siblings' and parents' perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study
K Kruithof, L IJzerman, A Nieuwenhuijse… - Journal of Intellectual …, 2021 - Taylor & Francis
Background Since the life expectancy of people with profound intellectual and multiple
disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents …
disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents …