[HTML][HTML] Exercise and rehabilitation in people with Ehlers-Danlos syndrome: a systematic review

S Buryk-Iggers, N Mittal, D Santa Mina… - … Research and Clinical …, 2022 - Elsevier
Objective To conduct a systematic review examining the effect of exercise and rehabilitation
in people with Ehlers-Danlos syndrome (EDS). Data Sources The following databases were …

Psychological interventions for individuals with Ehlers-Danlos syndrome and hypermobility spectrum disorder: a scoping review

JZ Song, D Luong, ECH Feldman, S Tran… - Orphanet Journal of …, 2023 - Springer
Purpose To identify the nature and extent of the evidence on psychological interventions
among individuals with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum …

Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States

E Estrella, PA Frazier - Disability and Rehabilitation, 2024 - Taylor & Francis
Purpose This cross-sectional mixed-method study examined healthcare experiences among
individuals in the US with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility …

Barriers to the diagnosis, Care, and management of Pediatric patients with Ehlers-Danlos Syndrome in the United States: a qualitative analysis

WR Black, LL Black, JT Jones - Global Pediatric Health, 2023 - journals.sagepub.com
Objectives: Ehlers-Danlos Syndromes (EDS) are a family of heritable connective tissue
diseases. Primary practitioners are capable of diagnosing and managing EDS; however, few …

Automated, vision-based goniometry and range of motion calculation in individuals with suspected ehlers-danlos syndromes/generalized hypermobility spectrum …

A Sabo, N Mittal, A Deshpande… - IEEE Journal of …, 2023 - ieeexplore.ieee.org
Generalized joint hypermobility (GJH) often leads clinicians to suspect a diagnosis of Ehlers
Danlos Syndrome (EDS), but it can be difficult to objectively assess. Video-based …

Development of a multidisciplinary clinic for patients with Ehlers Danlos syndromes: considerations and strategies

WR Black, JT Jones, ET Rush… - Journal of …, 2023 - Taylor & Francis
Abstract Ehlers-Danlos Syndromes (EDS) is a group of connective tissue disorders often
encountered within rheumatology clinics and is associated with several overlapping …

Feasibility of video-based joint hypermobility assessment in individuals with suspected Ehlers-Danlos syndromes/generalised hypermobility spectrum disorders: a …

N Mittal, A Sabo, A Deshpande, H Clarke, B Taati - BMJ open, 2022 - bmjopen.bmj.com
Introduction Ehlers-Danlos syndromes (EDS)/generalised hypermobility spectrum disorders
(G-HSD) affect the connective tissue of the body and present with a heterogeneous set of …

The GoodHope exercise and rehabilitation (GEAR) program for people with ehlers-danlos syndromes and generalized hypermobility spectrum disorders

N Mittal, D Santa Mina, S Buryk-Iggers… - Frontiers in …, 2021 - frontiersin.org
Introduction: The Ehlers-Danlos Syndromes (EDS) and Generalized Hypermobility Spectrum
Disorders (G-HSD) comprise a heterogeneous group of genetic disorders of abnormal …

An exploration of the journey to diagnosis of Ehlers-Danlos Syndrome (EDS) for women living in Australia

R Trudgian, T Flood - Plos one, 2024 - journals.plos.org
Introduction Ehlers-Danlos syndromes (EDS) is an umbrella term for a group of hereditary
connective tissue disorders usually featuring hyperextensible skin, easy bruising, poor …

Diagnosis and treatment of the Ehlers-Danlos syndromes in China: synopsis of the first guidelines

K Xu, G Li, Z Wu, TJ Zhang, N Wu… - Orphanet Journal of …, 2024 - Springer
Abstract Background The Ehlers-Danlos syndromes (EDS) are a group of rare hereditary
connective tissue disorders. EDS is clinically and genetically heterogeneous and usually …